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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Twenty-Five Year Follow-Up of Childhood Wilms Tumor: A Report from the Childhood Cancer Survivor Study.

    2011

    Citation: 57(7):1210-6

    Author(s): Termuhlen AM, Tersak JM, Liu Q, Yasui Y, Stovall M, Weathers R, Deutsch M, Sklar CA, Oeffinger KC, Armstrong G, Robison LL, Green DM.

    Journal: Pediatr Blood Cancer

  • Variants at 6q21 implicated PRDM1 in the etiology of therapy-induced second malignancies after Hodgkin's lymphoma.

    2011

    Citation: 17(8):941-3

    Author(s): Best T, Li D, Skol AD, Kirchhoff T, Jackson SA, Yasui Y, Bhatia S, Strong LC, Domcheck SM, Nathanson KL, Olopade OI, Huang RS, Mack TM, Conti DV, Offit K, Cozen W, Robison LL, Onel K.

    Journal: Nat Med

  • Adolescent behavior and adult health status in childhood cancer survivors.

    2010

    Citation: 4(3):210-7

    Author(s): Krull KR, Huang S, Gurney JG, Klosky JL, Leisenring W, Termuhlen A, Ness KK, Kumar Srivastava D, Mertens A, Stovall M, Robison LL, Hudson MM.

    Journal: J Cancer Surviv

  • Attentional and executive dysfunction as predictors of smoking within the Childhood Cancer Survivor Study cohort.

    2010

    Citation: 12(4): 344-54

    Author(s): Kahalley LS, Robinson LA, Tyc VL, Hudson MM, Leisenring W, Stratton K, Zeltzer L, Mertens AC, Robison LL, Hinds PS.

    Journal: Nicotine Tob Res

  • Cardiovascular risk factors in adult survivors of pediatric cancer: A Report from the Childhood Cancer Survivor Study.

    2010

    Citation: 19(1): 170-81

    Author(s): Meacham LR, Chow EJ, Ness KK, Kamdar KY, Chen Y, Yasui Y, Oeffinger KC, Sklar CA, Robison LL, Mertens AC.

    Journal: Cancer Epidemiol Biomarkers Prev

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