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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Neurocognitive status in long-term survivors of childhood CNS malignancies: A Report from the Childhood Cancer Survivor Study.

    2009

    Citation: 23(6):705-17

    Author(s): Ellenberg L, Liu Q, Gioia G, Yasui Y, Packer RJ, Mertens A, Donaldson SS, Stovall M, Kadan-Lottick N, Armstrong G, Robison LL, Zeltzer LK.

    Journal: Neuropsychology

  • Health behaviors, medical care, and interventions to promote healthy living in the Childhood Cancer Survivor Study.

    2009

    Citation: 27(14): 2363-73

    Author(s): Nathan PC, Ford JS, Henderson TO, Hudson MM, Emmons KM, Casillas JN, Lown EA, Ness KK, Oeffinger KC.

    Journal: J Clin Oncol

  • Psychological status in childhood cancer survivors: A Report from the Childhood Cancer Survivor Study.

    2009

    Citation: 27(14): 2396-404

    Author(s): Zeltzer LK, Recklitis C, Buchbinder D, Zebrack B, Casillas J, Tsao JC, Lu Q, Krull K.

    Journal: J Clin Oncol

  • Second neoplasms in survivors of childhood cancer: Findings from the Childhood Cancer Survivor Study cohort.

    2009

    Citation: 27(14): 2356-62

    Author(s): Meadows AT, Friedman DL, Neglia JP, Mertens AC, Donaldson SS, Stovall M, Hammond S, Yasui Y, Inskip PD.

    Journal: J Clin Oncol

  • Predictors of inactive lifestyle among adult survivors of childhood cancer: A Report from the Childhood Cancer Survivor Study.

    2009

    Citation: 115(9):1984-94

    Author(s): Ness KK, Leisenring WM, Huang S, Hudson MM, Gurney JG, Whelan K, Hobbie WL, Armstrong GT, Robison LL, Oeffinger KC.

    Journal: Cancer

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