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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Treatment-associated subsequent neoplasms among long-term survivors of childhood cancer: The Experience of Childhood Cancer Survivor Study.

    2009

    Citation: 39 Suppl 1:S32-7

    Author(s): Robison LL.

    Journal: Pediatr Radiol

  • Late mortality among 5-year survivors of childhood cancer: A summary from the Childhood Cancer Survivor Study

    2009

    Citation: 27(14): 2328-38

    Author(s): Armstrong GT, Liu Q, Yasui Y, Neglia JP, Leisenring W, Robison LL, Mertens AC.

    Journal: J Clin Oncol

  • Medical screening participation in the childhood cancer survivor study.

    2009

    Citation: 169(5):454-62

    Author(s): Cox CL, Hudson MM, Mertens A, Oeffinger K, Whitton J, Montgomery M, Robison LL.

    Journal: Arch Intern Med

  • Radiation dose and breast cancer risk in the Childhood Cancer Survivor Study.

    2009

    Citation: 27(24):3901-7

    Author(s): Inskip PD, Robison LL, Stovall M, Smith SA, Hammond S, Mertens AC, Whitton JA, Diller L, Kenney L, Donaldson SS, Meadows AT, Neglia JP.

    Journal: J Clin Oncol

  • Diabetes Mellitus in Long-Term Survivors of Childhood Cancer. Increased Risk Associated with Radiation Therapy: A Report from the Childhood Cancer Survivor Study.

    2009

    Citation: 169(15): 1381-8

    Author(s): Meacham LR, Sklar CA, Li S, Liu Q, Gimpel N, Yasui Y, Whitton JA, Stovall M, Robison LL, Oeffinger KC.

    Journal: Arch Intern Med

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