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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Chronic disease in the Childhood Cancer Survivor Study cohort: A review of published findings

    2009

    Citation: 27(14): 2339-55

    Author(s): Diller L, Chow EJ, Gurney JG, Hudson MM, Kadan-Lottick NS, Kawashima TI, Leisenring WM, Meacham LR, Mertens AC, Mulrooney DA, Oeffinger KC, Packer RJ, Robison LL, Sklar CA.

    Journal: J Clin Oncol

  • Risk of thyroid dysfunction and subsequent thyroid cancer among survivors of acute lymphoblastic leukemia: A Report from the Childhood Cancer Survivor Study.

    2009

    Citation: 53(3):432-7

    Author(s): Chow EJ, Friedman DL, Stovall M, Yasui Y, Whitton JA, Robison LL, Sklar CA.

    Journal: Pediatr Blood Cancer

  • Predictors of marriage and divorce in adult survivors of childhood cancers: A Report from the Childhood Cancer Survivor Study.

    2009

    Citation: 18(10):2626-35

    Author(s): Janson C, Leisenring W, Cox C, Termuhlen AM, Mertens AC, Whitton JA, Goodman P, Zeltzer L, Robison LL, Krull KR, Kadan-Lottick NS.

    Journal: Cancer Epidemiol Biomarkers Prev

  • Promoting physical activity in childhood cancer survivors: Results from the Childhood Cancer Survivor Study.

    2009

    Citation: 115(3):642-54

    Author(s): Cox CL, Montgomery M, Oeffinger KC, Leisenring W, Zeltzer L, Whitton JA, Mertens AC, Hudson MM, Robison LL.

    Journal: Cancer

  • Long-term outcomes in survivors of Neuroblastoma: A Report from the Childhood Cancer Survivor Study.

    2009

    Citation: 101(16):1131-40

    Author(s): Laverdiere C, Liu Q, Yasui Y, Nathan PC, Gurney JG, Stovall M, Diller LR, Cheung NK, Wolden S, Robison LL, Sklar CA.

    Journal: J Natl Cancer Inst

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