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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Determinants of mammography screening participation in adult childhood cancer survivors: Results from the Childhood Cancer Survivor Study.

    2009

    Citation: 36(3):335-344

    Author(s): Cox CL, Oeffinger KC, Montgomery M, Hudson MM, Mertens AC, Whitton J, Robison LL.

    Journal: Oncol Nurs Forum

  • Long-term outcomes among adult survivors of childhood central nervous system malignancies in the Childhood Cancer Survivor Study.

    2009

    Citation: 101(13):946-58

    Author(s): Armstrong GT, Liu Q, Yasui Y, Huang S, Ness KK, Leisenring W, Hudson MM, Donaldson SS, King AA, Stovall M, Krull KR, Robison LL, Packer RJ.

    Journal: J Natl Cancer Inst

  • Fertility of female survivors of childhood cancer: A Report from the Childhood Cancer Survivor Study.

    2009

    Citation: 27(16):2677-85

    Author(s): Green DM, Kawashima T, Stovall M, Leisenring W, Sklar CA, Mertens AC, Donaldson SS, Byrne J, Robison LL.

    Journal: J Clin Oncol

  • Pediatric cancer survivorship research: Experience of the Childhood Cancer Survivor Study.

    2009

    Citation: 27(14): 2319-27

    Author(s): Leisenring WM, Mertens AC, Armstrong GT, Stovall MA, Neglia JP, Lanctot JQ, Boice JD Jr, Whitton JA, Yasui Y.

    Journal: J Clin Oncol

  • Cardiac outcomes in a cohort of adult survivors of childhood and adolescent cancer: Retrospective analysis of the Childhood Cancer Survivor Study cohort.

    2009

    Citation: 339:b4606

    Author(s): Mulrooney DA, Yeazel MW, Kawashima T, Mertens AC, Mitby P, Stovall M, Donaldson SS, Green DM, Sklar CA, Robison LL, Leisenring WM.

    Journal: BMJ

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