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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Occupational outcomes of adult childhood cancer survivors: A Report from the Childhood Cancer Survivor Study.

    2011

    Citation: 117(13):3033-44

    Author(s): Kirchhoff AC, Krull KR, Ness KK, Park ER, Oeffinger KC, Hudson MM, Stovall M, Robison LL, Wickizer T, Leisenring W.

    Journal: Cancer

  • Occurrence of multiple subsequent neoplasms in long-term survivors of childhood cancer: A Report from the Childhood Cancer Survivor Study.

    2011

    Citation: 29(22): 3056-64

    Author(s): Armstrong GT, Liu W, Leisenring W, Yasui Y, Hammond S, Bhatia S, Neglia JP, Stovall M, Srivastava D, Robison LL.

    Journal: J Clin Oncol

  • Pain in Long-Term Adult Survivors of Childhood Cancers and Their Siblings: A Report from the Childhood Cancer Survivor Study.

    2011

    Citation: 152(11):2616-24

    Author(s): Lu Q, Krull KR, Leisenring W, Owen JE, Kawashima T, Tsao JC, Zebrack B, Mertens A, Armstrong GT, Stovall M, Robison LL, Zeltzer LK.

    Journal: Pain

  • Physical, mental and neurocognitive status and employment outcomes in the Childhood Cancer Survivor Study cohort.

    2011

    Citation: 20(9):1838-49

    Author(s): Kirchhoff AC, Krull KR, Ness KK, Armstrong GT, Park ER, Stovall M, Robison LL, Leisenring W.

    Journal: Cancer Epidemiol Biomarkers Prev

  • Physical therapy and chiropractic use among childhood cancer survivors with chronic disease: Impact on health-related quality of life.

    2011

    Citation: 5(1):73-81

    Author(s): Montgomery M, Huang S, Cox CL, Leisenring WM, Oeffinger KC, Hudson MM, Ginsberg J, Armstrong GT, Robison LL, Ness KK.

    Journal: J Cancer Surviv

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