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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Predictors of marriage and divorce in adult survivors of childhood cancers: A Report from the Childhood Cancer Survivor Study.

    2009

    Citation: 18(10):2626-35

    Author(s): Janson C, Leisenring W, Cox C, Termuhlen AM, Mertens AC, Whitton JA, Goodman P, Zeltzer L, Robison LL, Krull KR, Kadan-Lottick NS.

    Journal: Cancer Epidemiol Biomarkers Prev

  • Promoting physical activity in childhood cancer survivors: Results from the Childhood Cancer Survivor Study.

    2009

    Citation: 115(3):642-54

    Author(s): Cox CL, Montgomery M, Oeffinger KC, Leisenring W, Zeltzer L, Whitton JA, Mertens AC, Hudson MM, Robison LL.

    Journal: Cancer

  • Long-term outcomes in survivors of Neuroblastoma: A Report from the Childhood Cancer Survivor Study.

    2009

    Citation: 101(16):1131-40

    Author(s): Laverdiere C, Liu Q, Yasui Y, Nathan PC, Gurney JG, Stovall M, Diller LR, Cheung NK, Wolden S, Robison LL, Sklar CA.

    Journal: J Natl Cancer Inst

  • Assessment of selection bias in clinic-based populations of childhood cancer survivors: A Report from the Childhood Cancer Survivor Study.

    2009

    Citation: 52(3):379-86

    Author(s): Ness KK, Leisenring W, Goodman P, Kawashima T, Mertens AC, Oeffinger KC, Armstrong GT, Robison LL.

    Journal: Pediatr Blood Cancer

  • Long-Term Smoking Cessation Outcomes Among Childhood Cancer Survivors in The Partnership for Health Study.

    2009

    Citation: 27(1):52-60

    Author(s): Emmons KM, Puleo E, Mertens A, Gritz ER, Diller L, Li FP.

    Journal: J Clin Oncol

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