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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Auditory Complications in Childhood Cancer Survivors: A Report from the Childhood Cancer Survivor Study.

    2011

    Citation: 57(1):126-34

    Author(s): Whelan K, Stratton K, Kawashima T, Leisenring W, Hayashi S, Waterbor J, Blatt J, Sklar CA, Packer R, Mitby P, Robison LL, Mertens AC.

    Journal: Pediatr Blood Cancer

  • Decreased Fertility Among Female Childhood Cancer Survivors Who received 22 to 27 Gy Hypothalamic/Pituitary Irradiation: A Report from the Childhood Cancer Survivor Study.

    2011

    Citation: 95(6):1922-7

    Author(s): Green DM, Nolan VG, Kawashima T, Stovall M, Donaldson SS, Srivastava D, Leisenring W, Robison LL, Sklar CA.

    Journal: Fertil Steril

  • Defining medical posttraumatic stress among young adult survivors in the Childhood Cancer Survivor Study.

    2011

    Citation: 33(4):347-53

    Author(s): Stuber ML, Meeske KA, Leisenring W, Stratton K, Zeltzer LK, Dawson K, Kazak AE, Zebrack B, Mertens AC, Robison LL, Krull KR.

    Journal: Gen Hosp Psychiatry

  • Fatigue, vitality, sleep and neurocognitive functioning in adult survivors of childhood cancer: A Report from the Childhood Cancer Survivor Study.

    2011

    Citation: 117(11): 2559-68

    Author(s): Clanton NR, Klosky JL, Li C, Jain N, Srivastava DK, Mulrooney D, Zeltzer L, Stovall M, Robison LL, Krull KR.

    Journal: Cancer

  • Impact of insurance type on survivor-focused and general preventive health care utilization in adult survivors of childhood cancer: The Childhood Cancer Survivor Study (CCSS).

    2011

    Citation: 117(9): 1966-75

    Author(s): Casillas J, Castellino SM, Hudson MM, Mertens AC, Lima IS, Liu Q, Zeltzer LK, Yasui Y, Robison LL, Oeffinger KC.

    Journal: Cancer

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