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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • High-risk populations identified in Childhood Cancer Survivor Study Investigations: Implications for risk-based surveillance.

    2009

    Citation: 27(14): 2405-14

    Author(s): Hudson MM, Mulrooney DA, Bowers DC, Sklar CA, Green DM, Donaldson SS, Oeffinger KC, Neglia JP, Meadows AT, Robison LL.

    Journal: J Clin Oncol

  • Ovarian failure and reproductive outcomes after childhood cancer treatment: Results from the Childhood Cancer Survivor Study.

    2009

    Citation: 27(14): 2374-81

    Author(s): Green DM, Sklar CA, Boice JD Jr, Mulvihill JJ, Whitton JA, Stovall M, Yasui Y.

    Journal: J Clin Oncol

  • Behaviors associated with ultraviolet radiation exposure in a cohort of adult survivors of childhood and adolescent cancer: A Report from the Childhood Cancer Survivor Study.

    2009

    Citation: 115(18 Suppl):4374-84

    Author(s): Buchanan N, Leisenring W, Mitby PA, Meadows AT, Robison LL, Hudson MM, Mertens AC.

    Journal: Cancer

  • Chronic disease in the Childhood Cancer Survivor Study cohort: A review of published findings

    2009

    Citation: 27(14): 2339-55

    Author(s): Diller L, Chow EJ, Gurney JG, Hudson MM, Kadan-Lottick NS, Kawashima TI, Leisenring WM, Meacham LR, Mertens AC, Mulrooney DA, Oeffinger KC, Packer RJ, Robison LL, Sklar CA.

    Journal: J Clin Oncol

  • Risk of thyroid dysfunction and subsequent thyroid cancer among survivors of acute lymphoblastic leukemia: A Report from the Childhood Cancer Survivor Study.

    2009

    Citation: 53(3):432-7

    Author(s): Chow EJ, Friedman DL, Stovall M, Yasui Y, Whitton JA, Robison LL, Sklar CA.

    Journal: Pediatr Blood Cancer

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