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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Neurocognitive functioning in adult survivors of childhood non-central nervous system cancers.

    2010

    Citation: 102(12): 881-93

    Author(s): Kadan-Lottick NS, Zeltzer LK, Liu Q, Yasui Y, Ellenberg L, Gioia G, Robison LL, Krull KR.

    Journal: J Natl Cancer Inst

  • Cardiovascular risk factors in adult survivors of pediatric cancer: A Report from the Childhood Cancer Survivor Study.

    2010

    Citation: 19(1): 170-81

    Author(s): Meacham LR, Chow EJ, Ness KK, Kamdar KY, Chen Y, Yasui Y, Oeffinger KC, Sklar CA, Robison LL, Mertens AC.

    Journal: Cancer Epidemiol Biomarkers Prev

  • Long-term effects of radiation exposure among adult survivors of childhood cancer: Results from the Childhood Cancer Survivorship Study.

    2010

    Citation: 174(6):840-50

    Author(s): Armstrong GT, Stovall M, Robison LL.

    Journal: Radiat Res

  • Long-term survivors of Childhood Ewing Sarcoma: Report from the Childhood Cancer Survivor Study.

    2010

    Citation: 102(16): 1272-83

    Author(s): Ginsberg JP, Goodman P, Leisenring W, Ness KK, Meyers PA, Wolden SL, Smith SM, Stovall M, Hammond S, Robison LL, Oeffinger KC.

    Journal: J Natl Cancer Inst

  • Prevalence and predictors of posttraumatic stress disorder in adult survivors of childhood cancer.

    2010

    Citation: 125(5):e1124-34

    Author(s): Stuber ML, Meeske KA, Krull KR, Leisenring W, Stratton K, Kazak AE, Huber M, Zebrack B, Uijtdehaage SH, Mertens AC, Robison LL, Zeltzer LK.

    Journal: Pediatrics

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