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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Risk Factors for Smoking among Adolescent Survivors of Childhood Cancer: A Report from the Childhood Cancer Survivor Study.

    2012

    Citation: 58(3):428-34

    Author(s): Kahalley LS, Robinson LA, Tyc VL, Hudson MM, Leisenring W, Stratton K, Mertens AC, Zeltzer L, Robison LL, Hinds PS.

    Journal: Pediatr Blood Cancer

  • Risky Health Behavior Among Adolescents in the Childhood Cancer Survivor Study Cohort.

    2012

    Citation: 37(6):634-46

    Author(s): Klosky JL, Howell CR, Li Z, Foster RH, Mertens AC, Robison LL, Ness KK.

    Journal: J Pediatr Psychol

  • Scarring, disfigurement, and quality of life in long-term survivors of childhood cancer: A Report from the Childhood Cancer Survivor Study.

    2012

    Citation: 30(20): 2466-74

    Author(s): Kinahan KE, Sharp LK, Seidel K, Leisenring W, Didwania A, Lacouture ME, Stovall M, Haryani A, Robison LL, Krull KR.

    Journal: J Clin Oncol

  • Secondary Gastrointestinal Cancer in Childhood Cancer Survivors: A Cohort Study.

    2012

    Citation: 156(11):757-66

    Author(s): Henderson TO, Oeffinger KC, Whitton J, Leisenring W, Neglia J, Meadows A, Crotty C, Rubin DT, Diller L, Inskip P, Smith SA, Stovall M, Constine LS, Hammond S, Armstrong GT, Robison LL, Nathan PC.

    Journal: Ann Intern Med

  • Survivor Profiles Predict Health Behavior Intent: The Childhood Cancer Survivor Study.

    2012

    Citation: 21(5):469-78

    Author(s): Cox CL, Zhu L, Finnegan L, Steen BD, Hudson MM, Robison LL, Oeffinger KC.

    Journal: Psychooncology

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