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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Long-term survivors of childhood central nervous system malignancies: The experience of the Childhood Cancer Survivor Study.

    2010

    Citation: 14(4): 298-303

    Author(s): Armstrong GT.

    Journal: Eur J Paediatr Neurol

  • Knowledge of hepatitis C virus screening in long-term pediatric cancer survivors: A Report from the Childhood Cancer Survivor Study.

    2010

    Citation: 116(4): 974-82

    Author(s): Lansdale M, Castellino S, Marina N, Goodman P, Hudson MM, Mertens AC, Smith SM, Leisenring W, Robison LL, Oeffinger KC.

    Journal: Cancer

  • Fertility of male survivors of childhood cancer: A Report from the Childhood Cancer Survivor Study.

    2010

    Citation: 28(2): 332-9

    Author(s): Green DM, Kawashima T, Stovall M, Leisenring W, Sklar CA, Mertens AC, Donaldson SS, Byrne J, Robison LL.

    Journal: J Clin Oncol

  • Adolescent behavior and adult health status in childhood cancer survivors.

    2010

    Citation: 4(3):210-7

    Author(s): Krull KR, Huang S, Gurney JG, Klosky JL, Leisenring W, Termuhlen A, Ness KK, Kumar Srivastava D, Mertens A, Stovall M, Robison LL, Hudson MM.

    Journal: J Cancer Surviv

  • Ocular late effects in childhood and adolescent cancer survivors: A Report from the Childhood Cancer Survivor Study.

    2010

    Citation: 54(1):103-9

    Author(s): Whelan KF, Stratton K, Kawashima T, Waterbor JW, Castleberry RP, Stovall M, Sklar CA, Packer RJ, Mitby P, Aitken CL, Blatt J, Robison LL, Mertens AC.

    Journal: Pediatr Blood Cancer

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