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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Attentional and executive dysfunction as predictors of smoking within the Childhood Cancer Survivor Study cohort.

    2010

    Citation: 12(4): 344-54

    Author(s): Kahalley LS, Robinson LA, Tyc VL, Hudson MM, Leisenring W, Stratton K, Zeltzer L, Mertens AC, Robison LL, Hinds PS.

    Journal: Nicotine Tob Res

  • Suicide ideation in adult survivors of childhood cancer: A Report from the Childhood Cancer Survivor Study.

    2010

    Citation: 28(4): 655-61

    Author(s): Recklitis CJ, Diller LR, Li X, Najita J, Robison LL, Zeltzer L.

    Journal: J Clin Oncol

  • Region-Specific Radiotherapy and Neuropsychological Outcomes in Adult Survivors of Childhood CNS Malignancies.

    2010

    Citation: 12(11):1173-86

    Author(s): Armstrong GT, Jain N, Liu W, Merchant TE, Stovall M, Srivastava DK, Gurney JG, Packer RJ, Robison LL, Krull KR.

    Journal: Neuro Oncol

  • Secondary Malignant Neoplasms after Wilms Tumor: An International Collaborative Study.

    2010

    Citation: 127(3): 657-66

    Author(s): Breslow NE, Lange JM, Friedman DL, Green DM, Hawkins MM, Murphy MF, Neglia JP, Olsen JH, Peterson SM, Stiller CA, Robison LL.

    Journal: Int J Cancer

  • Subsequent neoplasms in 5-year survivors of childhood cancer: The Childhood Cancer Survivor Study.

    2010

    Citation: 102(14): 1083-95

    Author(s): Friedman DL, Whitton J, Leisenring W, Mertens AC, Hammond S, Stovall M, Donaldson SS, Meadows AT, Robison LL, Neglia JP.

    Journal: J Natl Cancer Inst

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