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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Perceived Positive Impact of Cancer Among Long-term Survivors of Childhood Cancer: A Report from the Childhood Cancer Survivor Study.

    2012

    Citation: 21(6): 630-9

    Author(s): Zebrack BJ, Stuber ML, Meeske KA, Phipps S, Krull KR, Liu Q, Yasui Y, Parry C, Hamilton R, Robison LL, Zeltzer LK.

    Journal: Psychooncology

  • Physical activity among adult survivors of childhood lower-extremity sarcoma.

    2012

    Citation: 6(1):45-53

    Author(s): Wampler MA, Galatino ML, Huang S, Gilchrist LS, Marchese VG, Morris GS, Scalzitti DA, Hudson MM, Oeffinger KC, Stovall M, Leisenring WM, Armstrong GT, Robison LL, Ness KK.

    Journal: J Cancer Surviv

  • Radiation-Related Risk of Basal Cell Carcinoma: A Report from the Childhood Cancer Survivor Study.

    2012

    Citation: 104(16): 1240-50

    Author(s): Watt TC, Inskip PD, Stratton K, Smith SA, Kry SF, Sigurdson AJ, Stovall M, Leisenring W, Robison LL, Mertens AC.

    Journal: J Natl Cancer Inst

  • Risk Factors Associated with Secondary Sarcomas in Childhood Cancer Survivors: A Report from the Childhood Cancer Survivor Study.

    2012

    Citation: 84(1): 224-30

    Author(s): Henderson TO, Rajaraman P, Stovall M, Constine LS, Olive A, Smith SA, Mertens A, Meadows A, Neglia JP, Hammond S, Whitton J, Inskip PD, Robison LL, Diller L.

    Journal: Int J Radiat Oncol Bio Phys

  • Risk Factors for Obesity in Adult Survivors of Childhood Cancer: A Report from the Childhood Cancer Survivor Study.

    2012

    Citation: 30(3):246-55

    Author(s): Green DM, Cox CL, Zhu L, Krull KR, Srivastava DK, Stovall M, Nolan VG, Ness KK, Donaldson SS, Oeffinger KC, Meacham LR, Sklar CA, Armstrong GT, Robison LL.

    Journal: J Clin Oncol

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