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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Twenty years of follow-up of survivors of childhood osteosarcoma: A Report from the Childhood Cancer Survivor Study.

    2011

    Citation: 117(3):625-34

    Author(s): Nagarajan R, Kamruzzaman A, Ness KK, Marchese VG, Sklar C, Mertens A, Yasui Y, Robison LL, Marina N.

    Journal: Cancer

  • Auditory Complications in Childhood Cancer Survivors: A Report from the Childhood Cancer Survivor Study.

    2011

    Citation: 57(1):126-34

    Author(s): Whelan K, Stratton K, Kawashima T, Leisenring W, Hayashi S, Waterbor J, Blatt J, Sklar CA, Packer R, Mitby P, Robison LL, Mertens AC.

    Journal: Pediatr Blood Cancer

  • Physical therapy and chiropractic use among childhood cancer survivors with chronic disease: Impact on health-related quality of life.

    2011

    Citation: 5(1):73-81

    Author(s): Montgomery M, Huang S, Cox CL, Leisenring WM, Oeffinger KC, Hudson MM, Ginsberg J, Armstrong GT, Robison LL, Ness KK.

    Journal: J Cancer Surviv

  • Defining medical posttraumatic stress among young adult survivors in the Childhood Cancer Survivor Study.

    2011

    Citation: 33(4):347-53

    Author(s): Stuber ML, Meeske KA, Leisenring W, Stratton K, Zeltzer LK, Dawson K, Kazak AE, Zebrack B, Mertens AC, Robison LL, Krull KR.

    Journal: Gen Hosp Psychiatry

  • Increasing rates of breast cancer and cardiac surveillance among high-risk survivors of childhood Hodgkin lymphoma following a mailed, one-page survivorship care plan.

    2011

    Citation: 56(5):818-24

    Author(s): Oeffinger KC, Hudson MM, Mertens AC, Smith SM, Mitby PA, Eshelman-Kent DA, Ford JS, Jones JK, Kamani S, Robison LL.

    Journal: Pediatr Blood Cancer

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