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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Screening and surveillance for second malignant neoplasms in adult survivors of childhood cancer: A Report from the Childhood Cancer Survivor Study.

    2010

    Citation: 153(7):442-51

    Author(s): Nathan PC, Ness KK, Mahoney MC, Li Z, Hudson MM, Ford JS, Landier W, Stovall M, Armstrong GT, Henderson TO, Robison LL, Oeffinger KC.

    Journal: Ann Intern Med

  • Characteristics of responders to a request for a buccal cell specimen among survivors of childhood cancer and their siblings.

    2010

    Citation: 55(1): 165-70

    Author(s): Ness KK, Li C, Mitby PA, Radloff GA, Mertens AC, Davies SM, Hammond S, Armstrong GT, Robison LL.

    Journal: Pediatr Blood Cancer

  • Stillbirth and neonatal death in relation to radiation exposure before conception: A retrospective cohort study.

    2010

    Citation: 376(9741): 624-30

    Author(s): Signorello LB, Mulvihill JJ, Green DM, Munro HM, Stovall M, Weathers RE, Mertens AC, Whitton JA, Robison LL, Boice JD Jr.

    Journal: Lancet

  • Unemployment among adult survivors of childhood cancer: A Report from the Childhood Cancer Survivor Study.

    2010

    Citation: 48(11):1015-25

    Author(s): Kirchhoff AC, Leisenring W, Krull KR, Ness KK, Friedman DL, Armstrong GT, Stovall M, Park ER, Oeffinger KC, Hudson MM, Robison LL, Wickizer T.

    Journal: Med Care

  • Risk of second primary thyroid cancer after radiotherapy for a childhood cancer in a large cohort study: An update from the Childhood Cancer Survivor Study.

    2010

    Citation: 174(6):741-52

    Author(s): Bhatti P, Veiga LH, Ronchers CM, Sigurdson AJ, Stovall M, Smith SA, Weathers R, Leisenring W, Mertens AC, Hammond S, Friedman DL, Neglia JP, Meadows AT, Donaldson SS, Sklar CA, Robison LL, Inskip PD.

    Journal: Radiat Res

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