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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Fertility of male survivors of childhood cancer: A Report from the Childhood Cancer Survivor Study.

    2010

    Citation: 28(2): 332-9

    Author(s): Green DM, Kawashima T, Stovall M, Leisenring W, Sklar CA, Mertens AC, Donaldson SS, Byrne J, Robison LL.

    Journal: J Clin Oncol

  • Adolescent behavior and adult health status in childhood cancer survivors.

    2010

    Citation: 4(3):210-7

    Author(s): Krull KR, Huang S, Gurney JG, Klosky JL, Leisenring W, Termuhlen A, Ness KK, Kumar Srivastava D, Mertens A, Stovall M, Robison LL, Hudson MM.

    Journal: J Cancer Surviv

  • Ocular late effects in childhood and adolescent cancer survivors: A Report from the Childhood Cancer Survivor Study.

    2010

    Citation: 54(1):103-9

    Author(s): Whelan KF, Stratton K, Kawashima T, Waterbor JW, Castleberry RP, Stovall M, Sklar CA, Packer RJ, Mitby P, Aitken CL, Blatt J, Robison LL, Mertens AC.

    Journal: Pediatr Blood Cancer

  • Inconsistent Mammography Perceptions and Practices Among Women at Risk of Breast Cancer Following a Pediatric Malignancy: A Report from the Childhood Cancer Survivor Study.

    2010

    Citation: 21(10):1585-95

    Author(s): Smith SM, Ford JS, Rakowski W, Moskowitz CS, Diller L, Hudson MM, Mertens AC, Stanton AL, Henderson TO, Leisenring WM, Robison LL, Oeffinger KC.

    Journal: Cancer Causes Control

  • Late-occurring neurologic sequelae in adult survivors of childhood acute lymphoblastic leukemia: A Report from the Childhood Cancer Survivor Study.

    2010

    Citation: 28(2): 324-31

    Author(s): Goldsby RE, Liu Q, Nathan PC, Bowers DC, Yeaton-Massey A, Raber SH, Hill D, Armstrong GT, Yasui Y, Zeltzer L, Robison LL, Packer RJ.

    Journal: J Clin Oncol

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