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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Renal Carcinoma After Childhood Cancer: A Report From the Childhood Cancer Survivor Study.

    2013

    Citation: 105(7): 504-8

    Author(s): Wilson CL, Ness KK, Neglia JP, Hammond S, Shnorhavorian M, Leisenring WL, Stovall M, Robison LL, Armstrong GT.

    Journal: J Natl Cancer Inst

  • Risk of Salivary Gland Cancer After Childhood Cancer: A Report from the Childhood Cancer Survivor Study.

    2013

    Citation: 85(3): 776-83

    Author(s): Boukheris H, Stovall M, Gilbert ES, Stratton KL, Smith SA, Weathers R, Hammond S, Mertens AC, Donaldson SS, Armstrong GT, Robison LL, Neglia JP, Inskip PD.

    Journal: Int J Radiat Oncol Biol Phys

  • Smokeless and dual tobacco use among males surviving childhood cancer: A Report from the Childhood Cancer Survivor Study.

    2013

    Citation: 22(6): 1025-9

    Author(s): Klosky JL, Hum AM, Zhang N, Ali KS, Srivastava DK, Klesges RC, Emmons KM, Ness KK, Stovall M, Robison LL, Hudson MM.

    Journal: Cancer Epidemiol Biomarkers Prev

  • Statistical analysis of mixed recurrent event data with application to cancer survivor study.

    2013

    Citation: 32(11): 1954-63

    Author(s): Zhu L, Tong X, Zhao H, Sun J, Srivastava DK, Leisenring W, Robison LL.

    Journal: Stat Med

  • Survivor Typologies Predict Medical Surveillance Participation: The Childhood Cancer Survivor Study.

    2013

    Citation: 22(7): 1534-42

    Author(s): Cox CL, Zhu L, Hudson MM, Steen BD, Robison LL, Oeffinger KC.

    Journal: Psychooncology

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