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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Predictors of Risk-based Medical Follow-up: A Report from the Childhood Cancer Survivor Study.

    2013

    Citation: 7(3): 379-91

    Author(s): Steele JR, Wall M, Salkowski N, Mitby P, Kawashima T, Yeazel MW, Hudson MM, Robison LL, Mertens AC.

    Journal: J Cancer Surviv

  • Prevalence and predictors of prescription psychoactive medication use in adult survivors of childhood cancer: A Report from the Childhood Cancer Survivor Study.

    2013

    Citation: 7(1): 104-14

    Author(s): Brinkman TM, Ullrich NJ, Zhang N, Green DM, Zeltzer LK, Lommel KM, Brouwers P, Srivastava DK, Jain N, Robison LL, Krull KR.

    Journal: J Cancer Surviv

  • Prevalence and Predictors of Risky and Heavy Alcohol Consumption Among Adult Siblings of Childhood Cancer Survivors.

    2013

    Citation: 22(5): 1134-43

    Author(s): Lown EA, Mertens AC, Korcha RA, Leisenring W, Hudson MM, Greenfield TK, Robison LL, Zeltzer LK.

    Journal: Psychooncology

  • Psychoactive medication use and neurocognitive function in adult survivors of childhood cancer: A Report from the Childhood Cancer Survivor Study.

    2013

    Citation: 60(3): 486-93

    Author(s): Brinkman TM, Zhang N, Ullrich NJ, Brouwers P, Green DM, Srivastava DK, Zeltzer LK, Stovall M, Robison LL, Krull KR.

    Journal: Pediatr Blood Cancer

  • Radiation, atherosclerotic risk factors, and stroke risk in survivors of pediatric cancer: A Report from the Childhood Cancer Survivor Study.

    2013

    Citation: 86(4): 649-55

    Author(s): Mueller S, Fullerton HJ, Stratton K, Leisenring W, Weathers RE, Stovall M, Armstrong GT, Goldsby RE, Packer RJ, Sklar CA, Bowers DC, Robison LL, Krull KR.

    Journal: Int J Radiat Oncol Biol Phys

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