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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Employer-Sponsored Health Insurance Coverage Limitations: Results from the Childhood Cancer Survivor Study.

    2013

    Citation: 21(2): 377-83

    Author(s): Kirchhoff AC, Kuhlthau K, Pajolek H, Leisenring W, Armstrong GT, Robison LL, Park ER.

    Journal: Support Care Center

  • Infertility, Infertility Treatment, and Achievement of Pregnancy in Female Survivors of Childhood Cancer: A Report from the Childhood Cancer Survivor Study Cohort.

    2013

    Citation: 14(9): 873-81

    Author(s): Barton SE, Najita JS, Ginsburg ES, Leisenring WM, Stovall M, Weathers RE, Sklar CA, Robison LL, Diller L.

    Journal: Lancet Oncol

  • Longitudinal Patterns of Psychological Distress in Adult Survivors of Childhood Cancer.

    2013

    Citation: 109(5):1373-81

    Author(s): Brinkman TM, Zhu L, Zeltzer LK, Recklitis CJ, Kimberg C, Zhang N, Muriel AC, Stovall M, Srivastava DK, Robison LL, Krull KR.

    Journal: Br J Cancer

  • Melanoma as a subsequent neoplasm in adult survivors of childhood cancer: A Report from the Childhood Cancer Survivor Study.

    2013

    Citation: 60(3): 461-6

    Author(s): Pappo AS, Armstrong GT, Liu W, Srivastava DK, McDonald A, Leisenring WM, Hammond S, Stovall M, Neglia JP, Robison LL.

    Journal: Pediatr Blood Cancer

  • Modifiable Risk Factors and Major Cardiac Events Among Adult Survivors of Childhood Cancer.

    2013

    Citation: 31(29):3673-80

    Author(s): Armstrong GT, Oeffinger KC, Chen Y, Kawashima T, Yasui Y, Leisenring W, Stovall M, Chow EJ, Sklar CA, Mulrooney DA, Mertens AC, Border W, Durand JB, Robison LL, Meacham LR.

    Journal: J Clin Oncol

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