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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Risky Health Behavior Among Adolescents in the Childhood Cancer Survivor Study Cohort.

    2012

    Citation: 37(6):634-46

    Author(s): Klosky JL, Howell CR, Li Z, Foster RH, Mertens AC, Robison LL, Ness KK.

    Journal: J Pediatr Psychol

  • Perceived Positive Impact of Cancer Among Long-term Survivors of Childhood Cancer: A Report from the Childhood Cancer Survivor Study.

    2012

    Citation: 21(6): 630-9

    Author(s): Zebrack BJ, Stuber ML, Meeske KA, Phipps S, Krull KR, Liu Q, Yasui Y, Parry C, Hamilton R, Robison LL, Zeltzer LK.

    Journal: Psychooncology

  • Secondary Gastrointestinal Cancer in Childhood Cancer Survivors: A Cohort Study.

    2012

    Citation: 156(11):757-66

    Author(s): Henderson TO, Oeffinger KC, Whitton J, Leisenring W, Neglia J, Meadows A, Crotty C, Rubin DT, Diller L, Inskip P, Smith SA, Stovall M, Constine LS, Hammond S, Armstrong GT, Robison LL, Nathan PC.

    Journal: Ann Intern Med

  • A Pooled Analysis of Thyroid Cancer Incidence Following Radiotherapy for Childhood Cancer.

    2012

    Citation: 178(4):365-76

    Author(s): Veiga LH, Lubin JH, Anderson H, de Vathaire F, Tucker M, Bhatti P, Schneider A, Johansson R, Inskip P, Kleinerman R, Shore R, Pottern L, Holmberg E, Hawkins MM, Adams MJ, Sadetzki S, Lundell M, Sakata R, Damber L, Neta G, Ron E.

    Journal: Radiat Res

  • Risk Factors for Obesity in Adult Survivors of Childhood Cancer: A Report from the Childhood Cancer Survivor Study.

    2012

    Citation: 30(3):246-55

    Author(s): Green DM, Cox CL, Zhu L, Krull KR, Srivastava DK, Stovall M, Nolan VG, Ness KK, Donaldson SS, Oeffinger KC, Meacham LR, Sklar CA, Armstrong GT, Robison LL.

    Journal: J Clin Oncol

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