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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Increasing Cardiomyopathy Screening in At-Risk Adult Survivors of Pediatric Malignancies: A Randomized Controlled Trial.

    2014

    Citation: 10;32(35):3974-81

    Author(s): Hudson MM, Leisenring W, Stratton KK, Tinner N, Steen BD, Ogg S, Barnes L, Oeffinger KC, Robison LL, Cox CL.

    Journal: J Clin Oncol

  • Infections Among Long-Term Survivors of Childhood and Adolescent Cancer: A Report from the Childhood Cancer Survivor Study.

    2014

    Citation: 120(16):2514-21

    Author(s): Perkins JL, Chen Y, Harris A, Diller L, Stovall M, Armstrong GT, Yasui Y, Robison LL, Sklar CA.

    Journal: Cancer

  • Late Cardiotoxicity in Aging Adult Survivors of Childhood Cancer.

    2014

    Citation: 36(1-2):19-26

    Author(s): Armstrong GT, Ross JD.

    Journal: Progress in Pediatr Cardiol

  • Male Infertility in Long-Term Survivors of Pediatric Cancer: A Report from the Childhood Cancer Survivor Study.

    2014

    Citation: 8(3):437-447

    Author(s): Wasilewski-Masker K, Seidel KD, Leisenring W, Mertens AC, Shnorhavorian M, Ritenour CW, Stovall M, Green DM, Sklar CA, Armstrong GT, Robison LL, Meacham LR.

    Journal: J Cancer Surviv

  • Noncancer-Related Mortality Risks in Adult Survivors of Pediatric Malignancies: The Childhood Cancer Survivor Study.

    2014

    Citation: 8(3):460-471

    Author(s): Cox CL, Nolan VG, Leisenring W, Yasui Y, Ogg SW, Mertens AC, Neglia JP, Ness KK, Armstrong GT, Robison LL.

    Journal: J Cancer Surviv

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