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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Fractures among long-term survivors of childhood cancer: A Report from the Childhood Cancer Survivor Study.

    2012

    Citation: 118(23):5920-8

    Author(s): Wilson CL, Dilley K, Ness KK, Leisenring WL, Sklar CA, Kaste SC, Stovall M, Green DM, Armstrong GT, Robison LL, Kadan-Lottick NS.

    Journal: Cancer

  • Chemotherapy and Thyroid Cancer Risk: A Report from the Childhood Cancer Survivor Study.

    2012

    Citation: 21(1):92-101

    Author(s): Veiga LH, Bhatti P, Ronckers CM, Sigurdson AJ, Stovall M, Smith SA, Weathers R, Leisenring W, Mertens AC, Hammond S, Neglia JP, Meadows AT, Donaldson SS, Sklar CA, Friedman DL, Robison LL, Inskip PD.

    Journal: Cancer Epidemiol Biomarkers Prev

  • Congenital anomalies in the children of cancer survivors: A Report from the Childhood Cancer Survivor Study.

    2012

    Citation: 30(3):239-45

    Author(s): Signorello LB, Mulvihill JJ, Green DM, Munro HM, Stovall M, Weathers RE, Mertens AC, Whitton JA, Robison LL, Boice JD Jr.

    Journal: J Clin Oncol

  • Risky Health Behavior Among Adolescents in the Childhood Cancer Survivor Study Cohort.

    2012

    Citation: 37(6):634-46

    Author(s): Klosky JL, Howell CR, Li Z, Foster RH, Mertens AC, Robison LL, Ness KK.

    Journal: J Pediatr Psychol

  • Perceived Positive Impact of Cancer Among Long-term Survivors of Childhood Cancer: A Report from the Childhood Cancer Survivor Study.

    2012

    Citation: 21(6): 630-9

    Author(s): Zebrack BJ, Stuber ML, Meeske KA, Phipps S, Krull KR, Liu Q, Yasui Y, Parry C, Hamilton R, Robison LL, Zeltzer LK.

    Journal: Psychooncology

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