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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Exercise and Risk of Major Cardiovascular Events in Adult Survivors of Childhood Hodgkin Lymphoma: A Report from the Childhood Cancer Survivor Study.

    2014

    Citation: 32(32):3643-50

    Author(s): Jones LW, Liu Q, Armstrong GT, Ness KK, Yasui Y, Devine K, Tonorezos E, Soares-Miranda L, Sklar CA, Douglas PS, Robison LL, Oeffinger KC.

    Journal: J Clin Oncol

  • Factors Associated with Recruiting Adult Survivors of Childhood Cancer into Clinic-Based Research.

    2014

    Citation: 61(10):1846-51

    Author(s): Mertens AC, Liu W, Ness KK, McDonald A, Hudson MM, Wasilewski-Masker K, Bhatia S, Nathan PC, Leonard M, Srivastava K, Robison LL, Green DM.

    Journal: Pediatr Blood Cancer

  • Growth Hormone Exposure as a Risk Factor for the Development of Subsequent Neoplasms of the Central Nervous System: A Report from the Childhood Cancer Survivor Study.

    2014

    Citation: 99(6):2030-7

    Author(s): Patterson BC, Chen Y, Sklar CA, Neglia J, Yasui Y, Mertens A, Armstrong GT, Meadows A, Stovall M, Robison LL, Meacham LR.

    Journal: J Clin Endocrinol Metab

  • Health and Well-Being in Adolescent Survivors of Early Childhood Cancer: A Report from the Childhood Cancer Survivor Study.

    2014

    Citation: 23(3):266-75

    Author(s): Mertens AC, Brand S, Ness KK, Li Z, Mitby PA, Riley A, Patenaude AF, Zeltzer L.

    Journal: Psychooncology

  • Health Conditions and Quality of Life in Survivors of Childhood Acute Myeloid Leukemia Comparing Post Remission Chemotherapy to BMT: A Report from the Children’s Oncology Group.

    2014

    Citation: 61(4):729-36

    Author(s): Schultz KA, Chen L, Chen Z, Kawashima T, Oeffinger KC, Woods WG, Nicholson HS, Neglia JP.

    Journal: Pediatr Blood Cancer

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