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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Renal Carcinoma After Childhood Cancer: A Report From the Childhood Cancer Survivor Study.

    2013

    Citation: 105(7): 504-8

    Author(s): Wilson CL, Ness KK, Neglia JP, Hammond S, Shnorhavorian M, Leisenring WL, Stovall M, Robison LL, Armstrong GT.

    Journal: J Natl Cancer Inst

  • Longitudinal Patterns of Psychological Distress in Adult Survivors of Childhood Cancer.

    2013

    Citation: 109(5):1373-81

    Author(s): Brinkman TM, Zhu L, Zeltzer LK, Recklitis CJ, Kimberg C, Zhang N, Muriel AC, Stovall M, Srivastava DK, Robison LL, Krull KR.

    Journal: Br J Cancer

  • Psychoactive medication use and neurocognitive function in adult survivors of childhood cancer: A Report from the Childhood Cancer Survivor Study.

    2013

    Citation: 60(3): 486-93

    Author(s): Brinkman TM, Zhang N, Ullrich NJ, Brouwers P, Green DM, Srivastava DK, Zeltzer LK, Stovall M, Robison LL, Krull KR.

    Journal: Pediatr Blood Cancer

  • Survivor Typologies Predict Medical Surveillance Participation: The Childhood Cancer Survivor Study.

    2013

    Citation: 22(7): 1534-42

    Author(s): Cox CL, Zhu L, Hudson MM, Steen BD, Robison LL, Oeffinger KC.

    Journal: Psychooncology

  • Melanoma as a subsequent neoplasm in adult survivors of childhood cancer: A Report from the Childhood Cancer Survivor Study.

    2013

    Citation: 60(3): 461-6

    Author(s): Pappo AS, Armstrong GT, Liu W, Srivastava DK, McDonald A, Leisenring WM, Hammond S, Stovall M, Neglia JP, Robison LL.

    Journal: Pediatr Blood Cancer

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