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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Risk of Salivary Gland Cancer After Childhood Cancer: A Report from the Childhood Cancer Survivor Study.

    2013

    Citation: 85(3): 776-83

    Author(s): Boukheris H, Stovall M, Gilbert ES, Stratton KL, Smith SA, Weathers R, Hammond S, Mertens AC, Donaldson SS, Armstrong GT, Robison LL, Neglia JP, Inskip PD.

    Journal: Int J Radiat Oncol Biol Phys

  • Differential effects of radiotherapy on growth and endocrine function among acute leukemia survivors: A Childhood Cancer Survivor Study Report.

    2013

    Citation: 60(1):110-5

    Author(s): Chow EJ, Liu W, Srivastava K, Leisenring WM, Hayashi RJ, Sklar CA, Stovall M, Robison LL, Baker KS.

    Journal: Pediatr Blood Cancer

  • Prevalence and Predictors of Risky and Heavy Alcohol Consumption Among Adult Siblings of Childhood Cancer Survivors.

    2013

    Citation: 22(5): 1134-43

    Author(s): Lown EA, Mertens AC, Korcha RA, Leisenring W, Hudson MM, Greenfield TK, Robison LL, Zeltzer LK.

    Journal: Psychooncology

  • Employer-Sponsored Health Insurance Coverage Limitations: Results from the Childhood Cancer Survivor Study.

    2013

    Citation: 21(2): 377-83

    Author(s): Kirchhoff AC, Kuhlthau K, Pajolek H, Leisenring W, Armstrong GT, Robison LL, Park ER.

    Journal: Support Care Center

  • Statistical analysis of mixed recurrent event data with application to cancer survivor study.

    2013

    Citation: 32(11): 1954-63

    Author(s): Zhu L, Tong X, Zhao H, Sun J, Srivastava DK, Leisenring W, Robison LL.

    Journal: Stat Med

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