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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Breast Cancer After Chest Radiation Therapy for Childhood Cancer.

    2014

    Citation: 32(21):2217-23

    Author(s): Moskowitz CS, Chou JF, Wolden SL, Bernstein JL, Malhotra J, Novetsky Friedman D, Mubdi NZ, Leisenring WM, Stovall M, Hammond S, Smith SA, Henderson TO, Boice JD, Hudson MM, Diller LR, Bhatia S, Kenney LB, Neglia JP, Begg CB, Robison LL, Oeffinger KC.

    Journal: J Clin Oncol

  • Male Infertility in Long-Term Survivors of Pediatric Cancer: A Report from the Childhood Cancer Survivor Study.

    2014

    Citation: 8(3):437-447

    Author(s): Wasilewski-Masker K, Seidel KD, Leisenring W, Mertens AC, Shnorhavorian M, Ritenour CW, Stovall M, Green DM, Sklar CA, Armstrong GT, Robison LL, Meacham LR.

    Journal: J Cancer Surviv

  • Exercise and Risk of Major Cardiovascular Events in Adult Survivors of Childhood Hodgkin Lymphoma: A Report from the Childhood Cancer Survivor Study.

    2014

    Citation: 32(32):3643-50

    Author(s): Jones LW, Liu Q, Armstrong GT, Ness KK, Yasui Y, Devine K, Tonorezos E, Soares-Miranda L, Sklar CA, Douglas PS, Robison LL, Oeffinger KC.

    Journal: J Clin Oncol

  • Development of a comprehensive health-related needs assessment for adult survivors of childhood cancer.

    2013

    Citation: 7(1): 1-19

    Author(s): Cox CL, Sherrill-Mittleman DA, Riley BB, Hudson MM, Williams LJ, Leisenring WM, Zacher MG, Robison LL.

    Journal: J Cancer Surviv

  • Radiation, atherosclerotic risk factors, and stroke risk in survivors of pediatric cancer: A Report from the Childhood Cancer Survivor Study.

    2013

    Citation: 86(4): 649-55

    Author(s): Mueller S, Fullerton HJ, Stratton K, Leisenring W, Weathers RE, Stovall M, Armstrong GT, Goldsby RE, Packer RJ, Sklar CA, Bowers DC, Robison LL, Krull KR.

    Journal: Int J Radiat Oncol Biol Phys

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