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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Predictors of Colorectal Cancer Surveillance among Childhood Cancer Treated with Radiation: A Report from the Childhood Cancer Survivor Study.

    2015

    Citation: 121(11):1856-63

    Author(s): Daniel CL, Kohler CL, Stratton KL, Oeffinger KC, Leisenring WM, Waterbor JW, Whelan KF, Armstrong GT, Henderson TO, Krull KR, Robison LL, Nathan PC.

    Journal: Cancer

  • Psychosocial and Neurocognitive Outcomes in Adult Survivors  of Adolescent and Early Young Adult Cancer: A Report from the Childhood Cancer Survivor Study.

    2015

    Citation: 33(23):2545-52

    Author(s): Prasad PK, Hardy KK, Zhang N, Edelstein K, Srivastava D, Zeltzer L, Stovall M, Seibel NL, Leisenring W, Armstrong GT, Robison LL, Krull K.

    Journal: J Clin Oncol

  • Psychosocial Outcomes in Adult Survivors of Retinoblastoma.

    2015

    Citation: 33(31):3608-14

    Author(s): Ford JS, Chou JF, Sklar CA, Oeffinger KC, Novetsky Friedman D, McCabe M, Robison LL, Kleinerman RA, Li Y, Marr BP, Abramson DH, Dunkel IJ.

    Journal: J Clin Oncol

  • Recurrent Stroke in Childhood Cancer Survivors.

    2015

    Citation: 85(12):1056-64

    Author(s): Fullerton HJ, Stratton K, Mueller S, Leisenring WW, Armstrong GT, Weathers RE, Stovall M, Sklar CA, Goldsby RE, Robison LL, Krull KR.

    Journal: Neurology

  • Regression Analysis of Mixed Recurrent-Event and Panel-Count Data with Additive Rate Models.

    2015

    Citation: 71(1):71-79

    Author(s): Zhu L, Zhao H, Sun J, Leisenring W, Robison LL.

    Journal: Biometrics

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