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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Chimeric EWSR1-FLI1 regulates the Ewing sarcoma susceptibility gene EGR2 via a GGAA microsatellite.

    2015

    Citation: 47(9):1073-1078

    Author(s): Grünewald TG, Bernard V, Gilardi-Hebenstreit P, Raynal V, Surdez D, Aynaud MM, Mirabeau O, Cidre-Aranaz F, Tirode F, Zaidi S, Perot G, Jonker AH, Lucchesi C, Le Deley MC, Oberlin O, Marec- Bérard P, Véron AS, Reynaud S, Lapouble E, Boeva V, Rio Frio T, Alonso J, Bhatia S, Pierron G, Cancel-Tassin G, Cussenot O, Cox DG, Morton LM, Machiela MJ, Chanock SJ, Charnay P, Delattre O.

    Journal: Nat Genet

  • Collaborative Research in Childhood Cancer Survivorship – the Current Landscape.

    2015

    Citation: 33(27):3055-64

    Author(s): Bhatia S, Armenian SH, Armstrong GT, Van Dulmen-den Broeder E, Hawkins MM, Kremer LC, Keuhni CE, Olsen JH, Robison LL, Hudson MM.

    Journal: J Clin Oncol

  • Conditional Survival in Pediatric Malignancies: Analysis of Data from the Childhood Cancer Survivor Study and the Surveillance, Epidemiology and End Results Program.

    2015

    Citation: 121(7):1108-17

    Author(s): Mertens AC, Yong J, Dietz AC, Kreiter E, Yasui Y, Bleyer A, Armstrong GT, Robison LL, Wasilewski-Masker K.

    Journal: Cancer

  • Efficacy of a Tobacco Quitline among Adult Survivors of Childhood Cancer.

    2015

    Citation: 17(6):710-8

    Author(s): Klesges RC, Krukowski RA, Klosky JL, Liu W, Srivastava DK, Boyett JM, Lanctot JQ, Hudson MM, Folsom C, Robison LL.

    Journal: Nicotine Tob Res

  • Equivalence ratio for daunorubicin to doxorubicin in relation to late heart failure in childhood cancer survivors.

    2015

    Citation: 33(32):3774-80

    Author(s): Feijen EA, Leisenring WM, Stratton KL, Ness KK, Van der Pal HJ, Caron HN, Armstrong GT, Green DM, Hudson MM, Oeffinger KC, Robison LL, Stovall M, Kremer LC, Chow EJ.

    Journal: J Clin Oncol

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