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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Predictors of Future Health-Related Quality of Life in Survivors of Adolescent Cancer.

    2014

    Citation: 61(10):1891-4

    Author(s): Nolan VG, Krull KR, Gurney JG, Leisenring W, Robison LL, Ness KK.

    Journal: Pediatr Blood Cancer

  • Relations between Posttraumatic Stress and Posttraumatic Growth in Long-term Survivors of Childhood Cancer: A Report from the Childhood Cancer Survivor Study.

    2014

    Citation: 33(8):878-82

    Author(s): Klosky JL, Krull KR, Kawashima T, Leisenring W, Randolph ME, Zebrack B, Stuber ML, Robison LL, Phipps S.

    Journal: Health Psychol

  • The Cyclophosphamide Equivalent Dose as an Approach for Quantifying Alkylating Agent Exposure: A Report from the Childhood Cancer Survivor Study.

    2014

    Citation: 61(1):53-67

    Author(s): Green DM, Nolan VG, Goodman PJ, Whitton JA, Srivastava D, Leisenring WM, Neglia JP, Sklar CA, Kaste SC, Hudson MM, Diller LR, Stovall M, Donaldson SS, Robison LL.

    Journal: Pediatr Blood Cancer

  • Pulmonary Outcomes in Survivors of Childhood Central Nervous System Malignancies: A Report from the Childhood Cancer Survivor Study.

    2014

    Citation: 61(2):319-25

    Author(s): Huang TT, Chen Y, Dietz AC, Yasui Y, Donaldson SS, Stokes DC, Stovall M, Leisenring WM, Sklar CA, Diller LR, Mertens AC, Armstrong GT, Green DM, Robison LL, Ness KK.

    Journal: Pediatr Blood Cancer

  • Infections Among Long-Term Survivors of Childhood and Adolescent Cancer: A Report from the Childhood Cancer Survivor Study.

    2014

    Citation: 120(16):2514-21

    Author(s): Perkins JL, Chen Y, Harris A, Diller L, Stovall M, Armstrong GT, Yasui Y, Robison LL, Sklar CA.

    Journal: Cancer

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