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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Prevalence and Predictors of Risky and Heavy Alcohol Consumption Among Adult Siblings of Childhood Cancer Survivors.

    2013

    Citation: 22(5): 1134-43

    Author(s): Lown EA, Mertens AC, Korcha RA, Leisenring W, Hudson MM, Greenfield TK, Robison LL, Zeltzer LK.

    Journal: Psychooncology

  • Employer-Sponsored Health Insurance Coverage Limitations: Results from the Childhood Cancer Survivor Study.

    2013

    Citation: 21(2): 377-83

    Author(s): Kirchhoff AC, Kuhlthau K, Pajolek H, Leisenring W, Armstrong GT, Robison LL, Park ER.

    Journal: Support Care Center

  • Statistical analysis of mixed recurrent event data with application to cancer survivor study.

    2013

    Citation: 32(11): 1954-63

    Author(s): Zhu L, Tong X, Zhao H, Sun J, Srivastava DK, Leisenring W, Robison LL.

    Journal: Stat Med

  • Smokeless and dual tobacco use among males surviving childhood cancer: A Report from the Childhood Cancer Survivor Study.

    2013

    Citation: 22(6): 1025-9

    Author(s): Klosky JL, Hum AM, Zhang N, Ali KS, Srivastava DK, Klesges RC, Emmons KM, Ness KK, Stovall M, Robison LL, Hudson MM.

    Journal: Cancer Epidemiol Biomarkers Prev

  • Modifiable Risk Factors and Major Cardiac Events Among Adult Survivors of Childhood Cancer.

    2013

    Citation: 31(29):3673-80

    Author(s): Armstrong GT, Oeffinger KC, Chen Y, Kawashima T, Yasui Y, Leisenring W, Stovall M, Chow EJ, Sklar CA, Mulrooney DA, Mertens AC, Border W, Durand JB, Robison LL, Meacham LR.

    Journal: J Clin Oncol

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