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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Identifying Predictors of Longitudinal Decline in the Level of Medical Care Received by Adult Survivors of Childhood Cancer: A Report from the Childhood Cancer Survivor Study.

    2015

    Citation: 50(4):1021-42

    Author(s): Casillas J, Oeffinger KC, Hudson MM, Greenberg ML, Yeazel MW, Ness KK, Henderson TO, Robison LL, Armstrong GT, Liu Q, Leisenring W, Yasui Y, Nathan PC.

    Journal: Health Serv Res

  • Individual Prediction of Heart Failure Among Childhood Cancer Survivors.

    2015

    Citation: 33(5):394-402

    Author(s): Chow EJ, Chen Y, Kremer LC, Breslow NE, Hudson MM, Armstrong GT, Border WL, Feijen EA, Green DM, Meacham LR, Meeske KA, Mulrooney DA, Ness KK, Oeffinger KC, Sklar CA, Stovall M, van der Pal HJ, Weathers RE, Robison LL, Yasui Y.

    Journal: J Clin Oncol

  • Intestinal Obstruction in Survivors of Childhood Cancer: A Report from the Childhood Cancer Survivor Study.

    2015

    Citation: 33(26):2893-900

    Author(s): Madenci AL, Fisher S, Diller LR, Goldsby RE, Leisenring WM, Oeffinger KC, Robison LL, Sklar CA, Stovall M, Weathers RE, Armstrong GT, Yasui Y, Weldon CB.

    Journal: J Clin Oncol

  • Lifestyle, Distress and Pregnancy Outcomes in the Childhood Cancer Survivor Cohort.

    2015

    Citation: 212(1):47.e1-10

    Author(s): Gawade PL, Oeffinger KC, Sklar CA, Green DM, Krull KR, Chemaitilly W, Stovall M, Leisenring W, Armstrong GT, Robison LL, Ness KK.

    Journal: Am J Obstet Gynecol

  • Longitudinal Smoking Patterns in Survivors of Childhood Cancer: An Update from the Childhood Cancer Survivor Study.

    2015

    Citation: 121(22):4035-43

    Author(s): Gibson TM, Liu W, Armstrong GT, Srivastava DK, Hudson MM, Leisenring WM, Mertens AC, Klesges RC, Oeffinger KC, Nathan PC, Robison LL.

    Journal: Cancer

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