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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Conditional Survival in Pediatric Malignancies: Analysis of Data from the Childhood Cancer Survivor Study and the Surveillance, Epidemiology and End Results Program.

    2015

    Citation: 121(7):1108-17

    Author(s): Mertens AC, Yong J, Dietz AC, Kreiter E, Yasui Y, Bleyer A, Armstrong GT, Robison LL, Wasilewski-Masker K.

    Journal: Cancer

  • Efficacy of a Tobacco Quitline among Adult Survivors of Childhood Cancer.

    2015

    Citation: 17(6):710-8

    Author(s): Klesges RC, Krukowski RA, Klosky JL, Liu W, Srivastava DK, Boyett JM, Lanctot JQ, Hudson MM, Folsom C, Robison LL.

    Journal: Nicotine Tob Res

  • Equivalence ratio for daunorubicin to doxorubicin in relation to late heart failure in childhood cancer survivors.

    2015

    Citation: 33(32):3774-80

    Author(s): Feijen EA, Leisenring WM, Stratton KL, Ness KK, Van der Pal HJ, Caron HN, Armstrong GT, Green DM, Hudson MM, Oeffinger KC, Robison LL, Stovall M, Kremer LC, Chow EJ.

    Journal: J Clin Oncol

  • Estimating the Burden of Recurrent Events in the Presence of Competing Risks: The Method of Mean Cumulative Count.

    2015

    Citation: 181(7):532-40

    Author(s): Dong H, Robison LL, Leisenring WM, Martin LJ, Armstrong GT, Yasui Y.

    Journal: Am J Epidemiol

  • Health care utilization, lifestyle, and emotional factors and mammography practices in the Childhood Cancer Survivor Study.

    2015

    Citation: 24(11):1699-706

    Author(s): Rosenberg SM, Moskowitz CS, Ford JS, Henderson TO, Frazier AL, Diller LR, Hudson MM, Stanton AL, Chou JF, Smith S, Leisenring WM, Mertens AC, Nathan PC, Krull KR, Robison LL, Oeffinger KC.

    Journal: Cancer Epidemiol Biomarkers Prev

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