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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Exercise and Risk of Major Cardiovascular Events in Adult Survivors of Childhood Hodgkin Lymphoma: A Report from the Childhood Cancer Survivor Study.

    2014

    Citation: 32(32):3643-50

    Author(s): Jones LW, Liu Q, Armstrong GT, Ness KK, Yasui Y, Devine K, Tonorezos E, Soares-Miranda L, Sklar CA, Douglas PS, Robison LL, Oeffinger KC.

    Journal: J Clin Oncol

  • Development of a comprehensive health-related needs assessment for adult survivors of childhood cancer.

    2013

    Citation: 7(1): 1-19

    Author(s): Cox CL, Sherrill-Mittleman DA, Riley BB, Hudson MM, Williams LJ, Leisenring WM, Zacher MG, Robison LL.

    Journal: J Cancer Surviv

  • Radiation, atherosclerotic risk factors, and stroke risk in survivors of pediatric cancer: A Report from the Childhood Cancer Survivor Study.

    2013

    Citation: 86(4): 649-55

    Author(s): Mueller S, Fullerton HJ, Stratton K, Leisenring W, Weathers RE, Stovall M, Armstrong GT, Goldsby RE, Packer RJ, Sklar CA, Bowers DC, Robison LL, Krull KR.

    Journal: Int J Radiat Oncol Biol Phys

  • Risk of Salivary Gland Cancer After Childhood Cancer: A Report from the Childhood Cancer Survivor Study.

    2013

    Citation: 85(3): 776-83

    Author(s): Boukheris H, Stovall M, Gilbert ES, Stratton KL, Smith SA, Weathers R, Hammond S, Mertens AC, Donaldson SS, Armstrong GT, Robison LL, Neglia JP, Inskip PD.

    Journal: Int J Radiat Oncol Biol Phys

  • Differential effects of radiotherapy on growth and endocrine function among acute leukemia survivors: A Childhood Cancer Survivor Study Report.

    2013

    Citation: 60(1):110-5

    Author(s): Chow EJ, Liu W, Srivastava K, Leisenring WM, Hayashi RJ, Sklar CA, Stovall M, Robison LL, Baker KS.

    Journal: Pediatr Blood Cancer

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