Search
Publications Icon

Publications

Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

We're sorry, it looks like there has been an error. Please try again soon.

  • Advancing Survivors' Knowledge (ASK) about Skin Cancer Study: Study Protocol for a Randomized Controlled Trial.

    2015

    Citation: 16:109

    Author(s): Daniel CL, Armstrong GT, Keske RR, Davine JA, McDonald AJ, Sprunck-Harrild KM, Coleman C, Haneuse SJ, Mertens AC, Emmons KM, Marghoob AA, Elkin EB, Dusza SW, Robison LL, Geller AC.

    Journal: Trials

  • Age-Dependent Changes in Health Status in the Childhood Cancer Survivor Cohort.

    2015

    Citation: 33(5):479-91

    Author(s): Hudson MM, Oeffinger KC, Jones K, Brinkman TM, Krull KR, Mulrooney DA, Mertens A, Castellino SM, Casillas J, Gurney JG, Nathan PC, Leisenring W, Robison LL, Ness KK.

    Journal: J Clin Oncol

  • Breast Cancer Following Spinal Irradiation for a Childhood Cancer: A Report from the Childhood Cancer Survivor Study.

    2015

    Citation: 117(2):213-6

    Author(s): Moskowitz CS, Malhotra J, Chou JF, Wolden SL, Weathers RE, Stovall M, Armstrong GT, Leisenring WM, Neglia JP, Robison LL, Oeffinger KC.

    Journal: Radiother Oncol

  • Characterization of Genomic Alterations in Radiation-related Breast Cancer Among Childhood Cancer Survivors using Comparative Genomic Hybridization (CGH) Arrays.

    2015

    Citation: 10(3):e0116078

    Author(s): Yang XR, Killian JK, Hammond S, Burke LS, Bennett H, Wang Y, Davis SR, Strong LC, Neglia J, Stovall M, Weathers RE, Robison LL, Bhatia S, Mabuchi K, Inskip PD, Meltzer P.

    Journal: PLOS ONE

  • Childhood Cancer Survivor Study Participants’ Perceptions and Understanding of the Affordable Care Act.

    2015

    Citation: 33(7):764-72

    Author(s): Park ER, Kirchhoff AC, Perez GK, Leisenring W, Weissman JS, Donelan K, Mertens AC, Reschovsky JD, Armstrong GT, Robison LL, Franklin M, Hyland K, Diller LR, Recklitis CJ, Kuhlthau KA.

    Journal: J Clin Oncol

Related Information