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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • The Cyclophosphamide Equivalent Dose as an Approach for Quantifying Alkylating Agent Exposure: A Report from the Childhood Cancer Survivor Study.

    2014

    Citation: 61(1):53-67

    Author(s): Green DM, Nolan VG, Goodman PJ, Whitton JA, Srivastava D, Leisenring WM, Neglia JP, Sklar CA, Kaste SC, Hudson MM, Diller LR, Stovall M, Donaldson SS, Robison LL.

    Journal: Pediatr Blood Cancer

  • Pulmonary Outcomes in Survivors of Childhood Central Nervous System Malignancies: A Report from the Childhood Cancer Survivor Study.

    2014

    Citation: 61(2):319-25

    Author(s): Huang TT, Chen Y, Dietz AC, Yasui Y, Donaldson SS, Stokes DC, Stovall M, Leisenring WM, Sklar CA, Diller LR, Mertens AC, Armstrong GT, Green DM, Robison LL, Ness KK.

    Journal: Pediatr Blood Cancer

  • Infections Among Long-Term Survivors of Childhood and Adolescent Cancer: A Report from the Childhood Cancer Survivor Study.

    2014

    Citation: 120(16):2514-21

    Author(s): Perkins JL, Chen Y, Harris A, Diller L, Stovall M, Armstrong GT, Yasui Y, Robison LL, Sklar CA.

    Journal: Cancer

  • Breast Cancer After Chest Radiation Therapy for Childhood Cancer.

    2014

    Citation: 32(21):2217-23

    Author(s): Moskowitz CS, Chou JF, Wolden SL, Bernstein JL, Malhotra J, Novetsky Friedman D, Mubdi NZ, Leisenring WM, Stovall M, Hammond S, Smith SA, Henderson TO, Boice JD, Hudson MM, Diller LR, Bhatia S, Kenney LB, Neglia JP, Begg CB, Robison LL, Oeffinger KC.

    Journal: J Clin Oncol

  • Male Infertility in Long-Term Survivors of Pediatric Cancer: A Report from the Childhood Cancer Survivor Study.

    2014

    Citation: 8(3):437-447

    Author(s): Wasilewski-Masker K, Seidel KD, Leisenring W, Mertens AC, Shnorhavorian M, Ritenour CW, Stovall M, Green DM, Sklar CA, Armstrong GT, Robison LL, Meacham LR.

    Journal: J Cancer Surviv

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