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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Breast Cancer Following Spinal Irradiation for a Childhood Cancer: A Report from the Childhood Cancer Survivor Study.

    2015

    Citation: 117(2):213-6

    Author(s): Moskowitz CS, Malhotra J, Chou JF, Wolden SL, Weathers RE, Stovall M, Armstrong GT, Leisenring WM, Neglia JP, Robison LL, Oeffinger KC.

    Journal: Radiother Oncol

  • Characterization of Genomic Alterations in Radiation-related Breast Cancer Among Childhood Cancer Survivors using Comparative Genomic Hybridization (CGH) Arrays.

    2015

    Citation: 10(3):e0116078

    Author(s): Yang XR, Killian JK, Hammond S, Burke LS, Bennett H, Wang Y, Davis SR, Strong LC, Neglia J, Stovall M, Weathers RE, Robison LL, Bhatia S, Mabuchi K, Inskip PD, Meltzer P.

    Journal: PLOS ONE

  • Childhood Cancer Survivor Study Participants’ Perceptions and Understanding of the Affordable Care Act.

    2015

    Citation: 33(7):764-72

    Author(s): Park ER, Kirchhoff AC, Perez GK, Leisenring W, Weissman JS, Donelan K, Mertens AC, Reschovsky JD, Armstrong GT, Robison LL, Franklin M, Hyland K, Diller LR, Recklitis CJ, Kuhlthau KA.

    Journal: J Clin Oncol

  • Chimeric EWSR1-FLI1 regulates the Ewing sarcoma susceptibility gene EGR2 via a GGAA microsatellite.

    2015

    Citation: 47(9):1073-1078

    Author(s): Grünewald TG, Bernard V, Gilardi-Hebenstreit P, Raynal V, Surdez D, Aynaud MM, Mirabeau O, Cidre-Aranaz F, Tirode F, Zaidi S, Perot G, Jonker AH, Lucchesi C, Le Deley MC, Oberlin O, Marec- Bérard P, Véron AS, Reynaud S, Lapouble E, Boeva V, Rio Frio T, Alonso J, Bhatia S, Pierron G, Cancel-Tassin G, Cussenot O, Cox DG, Morton LM, Machiela MJ, Chanock SJ, Charnay P, Delattre O.

    Journal: Nat Genet

  • Collaborative Research in Childhood Cancer Survivorship – the Current Landscape.

    2015

    Citation: 33(27):3055-64

    Author(s): Bhatia S, Armenian SH, Armstrong GT, Van Dulmen-den Broeder E, Hawkins MM, Kremer LC, Keuhni CE, Olsen JH, Robison LL, Hudson MM.

    Journal: J Clin Oncol

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