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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Factors Associated with Recruiting Adult Survivors of Childhood Cancer into Clinic-Based Research.

    2014

    Citation: 61(10):1846-51

    Author(s): Mertens AC, Liu W, Ness KK, McDonald A, Hudson MM, Wasilewski-Masker K, Bhatia S, Nathan PC, Leonard M, Srivastava K, Robison LL, Green DM.

    Journal: Pediatr Blood Cancer

  • Health Conditions and Quality of Life in Survivors of Childhood Acute Myeloid Leukemia Comparing Post Remission Chemotherapy to BMT: A Report from the Children’s Oncology Group.

    2014

    Citation: 61(4):729-36

    Author(s): Schultz KA, Chen L, Chen Z, Kawashima T, Oeffinger KC, Woods WG, Nicholson HS, Neglia JP.

    Journal: Pediatr Blood Cancer

  • Aging and Risk of Severe, Disabling, Life-Threatening, and Fatal Events in the Childhood Cancer Survivor Study.

    2014

    Citation: 32(12):1218-27

    Author(s): Armstrong GT, Kawashima T, Leisenring W, Stratton K, Stovall M, Hudson MM, Sklar CA, Robison LL, Oeffinger KC.

    Journal: J Clin Oncol

  • Predictors of Future Health-Related Quality of Life in Survivors of Adolescent Cancer.

    2014

    Citation: 61(10):1891-4

    Author(s): Nolan VG, Krull KR, Gurney JG, Leisenring W, Robison LL, Ness KK.

    Journal: Pediatr Blood Cancer

  • Relations between Posttraumatic Stress and Posttraumatic Growth in Long-term Survivors of Childhood Cancer: A Report from the Childhood Cancer Survivor Study.

    2014

    Citation: 33(8):878-82

    Author(s): Klosky JL, Krull KR, Kawashima T, Leisenring W, Randolph ME, Zebrack B, Stuber ML, Robison LL, Phipps S.

    Journal: Health Psychol

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