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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Decline in Physical Activity Level in the Childhood Cancer Survivor Study cohort.

    2014

    Citation: 23(8):1619-27

    Author(s): Wilson CL, Stratton K, Leisenring WM, Oeffinger KC, Nathan PC, Wasilewski-Masker K, Hudson MM, Castellino SM, Stovall M, Armstrong GT, Brinkman TM, Krull KR, Robison LL, Ness KK.

    Journal: Cancer Epidemiol Biomarkers Prev

  • Risky Sexual Behavior in Adolescent Survivors of Childhood Cancer: A Report from the Childhood Cancer Survivor Study.

    2014

    Citation: 33(8):868-77

    Author(s): Klosky JL, Foster RH, Li Z, Peasant C, Howell CR, Mertens AC, Robison LL, Ness KK.

    Journal: Health Psychol

  • Telomere Content and Risk of Second Malignant Neoplasm in Survivors of Childhood Cancer: A Report from the Childhood Cancer Survivor Study.

    2014

    Citation: 20(4):904-11

    Author(s): Gramatges MM, Liu Q, Yasui Y, Okcu MF, Neglia JP, Strong LC, Armstrong GT, Robison LL, Bhatia S.

    Journal: Clin Cancer Res

  • Noncancer-Related Mortality Risks in Adult Survivors of Pediatric Malignancies: The Childhood Cancer Survivor Study.

    2014

    Citation: 8(3):460-471

    Author(s): Cox CL, Nolan VG, Leisenring W, Yasui Y, Ogg SW, Mertens AC, Neglia JP, Ness KK, Armstrong GT, Robison LL.

    Journal: J Cancer Surviv

  • Cost-Effectiveness of the Children's Oncology Group Long-Term Follow-up Screening Guidelines for Childhood Cancer Survivors at Risk for Treatment-Related Heart Failure.

    2014

    Citation: 160(10):672-83

    Author(s): Wong FL, Bhatia S, Landier W, Francisco L, Leisenring W, Hudson MM, Armstrong GT, Mertens A, Stovall M, Robison LL, Lyman GH, Lipshultz SE, Armenian SH.

    Journal: Ann Intern Med

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