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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Racial/Ethnic Differences in Risk of Adverse Outcomes Among Childhood Cancer Survivors: The Childhood Cancer Survivor Study.

    2016

    Citation: 34(14):1634-43

    Author(s): Liu Q, Leisenring WM, Ness KK, Robison LL, Armstrong GT, Yasui Y, Bhatia S.

    Journal: J Clin Oncol

  • Radiation-related New Primary Solid Cancers in the Childhood Cancer Survivor Study: Comparative Radiation Dose Response and Modification of Treatment Effects

    2016

    Citation: 94(4):800-7

    Author(s): Inskip PD, Sigurdson AJ, Veiga L, Bhatti P, Ronckers C, Rajaraman P, Boukeris H, Stovall M, Smith S, Hammond S, Henderson TO, Watt TC, Mertens AC, Leisenring W, Stratton K, Whitton J, Donaldson SS, Armstrong GT, Robison LL, Neglia JP.

    Journal: Int J Radiat Oncol Biol Phys

  • Reduction in Late Mortality among 5-Year Survivors of Childhood Cancer.

    2016

    Citation: 374(9):833-42

    Author(s): Armstrong GT, Chen Y, Yasui Y, Leisenring W, Gibson TM, Mertens AC, Stovall M, Oeffinger KC, Bhatia S, Krull KR, Nathan PC, Neglia JP, Green DM, Hudson MM, Robison LL.

    Journal: N Engl J Med

  • Risk and Impact of Pulmonary Complications in Survivors of Childhood Cancer: A Report from the Childhood Cancer Survivor Study.

    2016

    Citation: 122(23):3687-3696

    Author(s): Dietz AC, Chen Y, Yasui Y, Ness KK, Hagood JS, Chow EJ, Stovall M, Neglia JP, Oeffinger KC, Mertens AC, Robison LL, Armstrong GT, Mulrooney DA.

    Journal: Cancer

  • The Risk of Cataract among Survivors of Childhood and Adolescent Cancer: A Report from the Childhood Cancer Survivor Study.

    2016

    Citation: 185(4):366-74

    Author(s): Chodick G, Sigurdson AJ, Kleinerman RA, Sklar CA, Leisenring W, Mertens AC, Stovall M, Smith SA, Weathers RE, Veiga LH, Robison LL, Inskip PD.

    Journal: Rad Res

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