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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Factors Supporting Cardiomyopathy Screening Among At-risk Adult Survivors of Pediatric Malignancies.

    2016

    Citation: 25(4):1307-1316

    Author(s): Cox CL, Zhu L, Ojha RP, Steen BD, Ogg S, Robison LL, Hudson MM

    Journal: Support Care Cancer

  • Impact of Vision Loss Among Survivors of Childhood Central Nervous System Astroglial Tumors.

    2016

    Citation: 122(5):730-9

    Author(s): de Blank P, Fisher MJ, Lu L, Leisenring WM, Ness KK, Sklar CA, Stovall M, Vukadinovich C, Robison LL, Armstrong GT, Krull KR.

    Journal: Cancer

  • Increasing Cardiomyopathy Screening in Childhood Cancer Survivors: A Cost Analysis of Advanced Practice Nurse Phone Counseling. 

    2016

    Citation: 43(6):E242-50

    Author(s): Cox CL, Andersen MR, Santucci A, Robison LL, Hudson MM.

    Journal: Oncol Nurs Forum

  • Meta-analysis of genome-wide association studies reveals genetic overlap between Hodgkin lymphoma and multiple sclerosis.

    2016

    Citation: 45(3):728-40

    Author(s): Khankhanian P, Cozen W, Himmelstein DS, Madireddy L, Din L, van den Berg A, Matsushita T, Glaser SL, Moré JM, Smedby KE, Baranzini SE, Mack TM, Lizée A, de Sanjosé S, Gourraud PA, Nieters A, Hauser SL, Cocco P, Maynadié M, Foretová L, Staines A, Delahaye-Sourdeix M, Li D, Bhatia S, Melbye M, Onel K, Jerrett R, McKay JD, Okesenberg JR, Hjalgrim H.

    Journal: Int J Epidemiol

  • Patterns and predictors of clustered risky health behaviors among adult survivors of childhood cancer: A report from the Childhood Cancer Survivor Study.

    2016

    Citation: 122(17):2747-56

    Author(s): Lown EA, Hijiya N, Zhang N, Srivastava DK, Leisenring WM, Nathan PC, Castellino SM, Devine KA, Dilley K, Krull KR, Oeffinger KC, Hudson MM, Armstrong GT, Robison LL, Ness KK.

    Journal: Cancer

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