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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Risk of Late Effects of Treatment in Children Newly Diagnosed with Standard-Risk Acute Lymphoblastic Leukaemia: A Report from the Childhood Cancer Survivor Study Cohort.

    2014

    Citation: 15(8):841-51

    Author(s): Essig S, Li Q, Chen Y, Hitzler J, Leisenring W, Greenberg M, Sklar C, Hudson MM, Armstrong GT, Krull KR, Neglia JP, Oeffinger KC, Robison LL, Kuehni CE, Yasui Y, Nathan PC.

    Journal: Lancet Oncol

  • Psychosexual Functioning Among Adult Female Survivors of Childhood Cancer: A Report From the Childhood Cancer Survivor Study.

    2014

    Citation: 32(28):3126-36

    Author(s): Ford JS, Kawashima T, Whitton J, Leisenring W, Laverdiere C, Stovall M, Zeltzer L, Robison LL, Sklar CA.

    Journal: J Clin Oncol

  • Growth Hormone Exposure as a Risk Factor for the Development of Subsequent Neoplasms of the Central Nervous System: A Report from the Childhood Cancer Survivor Study.

    2014

    Citation: 99(6):2030-7

    Author(s): Patterson BC, Chen Y, Sklar CA, Neglia J, Yasui Y, Mertens A, Armstrong GT, Meadows A, Stovall M, Robison LL, Meacham LR.

    Journal: J Clin Endocrinol Metab

  • Regression Analysis of Mixed Recurrent-Event and Panel-Count Data.

    2014

    Citation: 15(3):555-68

    Author(s): Zhu L, Tong X, Sun J, Chen M, Srivastava DK, Leisenring W, Robison LL.

    Journal: Biostatistics

  • Late Cardiotoxicity in Aging Adult Survivors of Childhood Cancer.

    2014

    Citation: 36(1-2):19-26

    Author(s): Armstrong GT, Ross JD.

    Journal: Progress in Pediatr Cardiol

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