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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Radiation-associated breast cancer and gonadal hormone exposure: a report from the Childhood Cancer Survivor Study.

    2017

    Citation: 117(2):290-299

    Author(s): Moskowitz CS, Chou JF, Sklar CA, Barnea D, Ronckers CM, Friedman DN, Neglia JP, Turcotte L, Howell RM, Henderson TO, Armstrong GT, Leisenring WM, Robison LL, van Leeuwen FE, Pike MC, Oeffinger KC.

    Journal: Br J Cancer

  • Regression Analysis of Mixed Panel Count Data with Dependent Terminal Events.

    2017

    Citation: 36(10):1669-1680

    Author(s): Yu G, Zhu L, Li Y, Sun J, Robison LL.

    Journal: Stat Med

  • Somatic and germline TP53 alterations in second malignant neoplasms from pediatric cancer survivors.

    2017

    Citation: 23(7):1852-1861

    Author(s): Sherborne AL, Lavergne V, Yu K, Lee L, Davidson PR, Mazor T, Smirnoff I, Horvai A, Loh M, DuBois SG, Goldsby RE, Neglia J, Hammond S, Robison LL, Wustrack R, Costello J, Nakamura AO, Shannon K, Bhatia S, Nakamura JL.

    Journal: Clin Cancer Res

  • Temporal Trends in Treatment and Subsequent Neoplasm Risk among 5-Year Survivors of Childhood Cancer, 1970-2015.

    2017

    Citation: 317(8):814-824

    Author(s): Turcotte LM, Liu Q, Yasui Y, Arnold MA, Hammond S, Howell RM, Smith SA, Weathers RE, Henderson TO, Gibson TM, Leisenring W, Armstrong GT, Robison LL, Neglia JP.

    Journal: JAMA

  • Thyroid Cancer Following Childhood Low-Dose Radiation Exposure: A Pooled Analysis of Nine Cohorts.

    2017

    Citation: 102(7):2575-2583

    Author(s): Lubin JH, Adams MJ, Shore R, Holmberg E, Schneider AB, Hawkins MM, Robison LL, Inskip PD, Lundell M, Johansson R, Kleinerman RA, de Vathaire F, Damber L, Sadetzki S, Tucker M, Sakata R, Veiga LHS.

    Journal: J Clin Endocrinol Metab

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