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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Age-Dependent Changes in Health Status in the Childhood Cancer Survivor Cohort.

    2015

    Citation: 33(5):479-91

    Author(s): Hudson MM, Oeffinger KC, Jones K, Brinkman TM, Krull KR, Mulrooney DA, Mertens A, Castellino SM, Casillas J, Gurney JG, Nathan PC, Leisenring W, Robison LL, Ness KK.

    Journal: J Clin Oncol

  • Subsequent Neoplasms in Survivors of Childhood Central Nervous System Tumors: Risk After Modern Multimodal Therapy.

    2015

    Citation: 17(3):448-56

    Author(s): Tsui K, Gajjar A, Li C, Srivastava D, Broniscer A, Wetmore C, Kun LE, Merchant TE, Ellison DW, Orr BA, Boop FA, Klimo P, Ross J, Robison LL, Armstrong GT.

    Journal: Neuro Oncol

  • Lifestyle, Distress and Pregnancy Outcomes in the Childhood Cancer Survivor Cohort.

    2015

    Citation: 212(1):47.e1-10

    Author(s): Gawade PL, Oeffinger KC, Sklar CA, Green DM, Krull KR, Chemaitilly W, Stovall M, Leisenring W, Armstrong GT, Robison LL, Ness KK.

    Journal: Am J Obstet Gynecol

  • Equivalence ratio for daunorubicin to doxorubicin in relation to late heart failure in childhood cancer survivors.

    2015

    Citation: 33(32):3774-80

    Author(s): Feijen EA, Leisenring WM, Stratton KL, Ness KK, Van der Pal HJ, Caron HN, Armstrong GT, Green DM, Hudson MM, Oeffinger KC, Robison LL, Stovall M, Kremer LC, Chow EJ.

    Journal: J Clin Oncol

  • Supplemental Security Income and Social Security Disability Insurance Coverage among Adult, Long-Term Childhood Cancer Survivors.

    2015

    Citation: 107(6)

    Author(s): Kirchhoff AC, Parsons HM, Kuhlthau KA, Leisenring W, Donelan K, Warner EL, Armstrong GT, Robison LL, Oeffinger KC, Park ER.

    Journal: J Natl Cancer Inst

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