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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Risk of Subsequent Neoplasms in the Fifth and Sixth Decades of Life in the Childhood Cancer Survivor Study Cohort.

    2015

    Citation: 33(31):3568-75

    Author(s): Turcotte LM, Whitton JA, Friedman DL, Hammond S, Armstrong GT, Leisenring W, Robison LL, Negalia JP.

    Journal: J Clin Oncol

  • Longitudinal Smoking Patterns in Survivors of Childhood Cancer: An Update from the Childhood Cancer Survivor Study.

    2015

    Citation: 121(22):4035-43

    Author(s): Gibson TM, Liu W, Armstrong GT, Srivastava DK, Hudson MM, Leisenring WM, Mertens AC, Klesges RC, Oeffinger KC, Nathan PC, Robison LL.

    Journal: Cancer

  • Psychosocial Outcomes in Adult Survivors of Retinoblastoma.

    2015

    Citation: 33(31):3608-14

    Author(s): Ford JS, Chou JF, Sklar CA, Oeffinger KC, Novetsky Friedman D, McCabe M, Robison LL, Kleinerman RA, Li Y, Marr BP, Abramson DH, Dunkel IJ.

    Journal: J Clin Oncol

  • Regression Analysis of Mixed Recurrent-Event and Panel-Count Data with Additive Rate Models.

    2015

    Citation: 71(1):71-79

    Author(s): Zhu L, Zhao H, Sun J, Leisenring W, Robison LL.

    Journal: Biometrics

  • Recurrent Stroke in Childhood Cancer Survivors.

    2015

    Citation: 85(12):1056-64

    Author(s): Fullerton HJ, Stratton K, Mueller S, Leisenring WW, Armstrong GT, Weathers RE, Stovall M, Sklar CA, Goldsby RE, Robison LL, Krull KR.

    Journal: Neurology

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