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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Efficacy of a Tobacco Quitline among Adult Survivors of Childhood Cancer.

    2015

    Citation: 17(6):710-8

    Author(s): Klesges RC, Krukowski RA, Klosky JL, Liu W, Srivastava DK, Boyett JM, Lanctot JQ, Hudson MM, Folsom C, Robison LL.

    Journal: Nicotine Tob Res

  • Survivors of Childhood Cancer in the United States: Prevalence and Burden of Morbidity.

    2015

    Citation: 24(4):653-63

    Author(s): Phillips SM, Padgett L, Leisenring W, Stratton KK, Bishop K, Krull KR, Alfano CM, Gibson TMdeMoor JS, Hartigan DB, Armstrong GT, Robison LL, Rowland JH, Oeffinger KC, Mariotto AB.

    Journal: Cancer Epidemiol Biomarkers Prev

  • Identifying Predictors of Longitudinal Decline in the Level of Medical Care Received by Adult Survivors of Childhood Cancer: A Report from the Childhood Cancer Survivor Study.

    2015

    Citation: 50(4):1021-42

    Author(s): Casillas J, Oeffinger KC, Hudson MM, Greenberg ML, Yeazel MW, Ness KK, Henderson TO, Robison LL, Armstrong GT, Liu Q, Leisenring W, Yasui Y, Nathan PC.

    Journal: Health Serv Res

  • Breast Cancer Following Spinal Irradiation for a Childhood Cancer: A Report from the Childhood Cancer Survivor Study.

    2015

    Citation: 117(2):213-6

    Author(s): Moskowitz CS, Malhotra J, Chou JF, Wolden SL, Weathers RE, Stovall M, Armstrong GT, Leisenring WM, Neglia JP, Robison LL, Oeffinger KC.

    Journal: Radiother Oncol

  • Childhood Cancer Survivor Study Participants’ Perceptions and Understanding of the Affordable Care Act.

    2015

    Citation: 33(7):764-72

    Author(s): Park ER, Kirchhoff AC, Perez GK, Leisenring W, Weissman JS, Donelan K, Mertens AC, Reschovsky JD, Armstrong GT, Robison LL, Franklin M, Hyland K, Diller LR, Recklitis CJ, Kuhlthau KA.

    Journal: J Clin Oncol

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