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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Patterns of Internet-based health information seeking in adult survivors of childhood cancer.

    2018

    Citation: 65(5):e26954

    Author(s): Claridy MD, Hudson MM, Caplan L, Mitby PA, Leisenring W, Smith SA, Robison LL, Mertens AC.

    Journal: Pediatr Blood Cancer

  • Perceptions of future health and cancer risk in adult survivors of childhood cancer: A report from the Childhood Cancer Survivor Study.

    2018

    Citation: 124(16):3436-3444

    Author(s): Gibson TM, Li C, Armstrong GT, Srivastava DK, Leisenring WM, Mertens A, Brinkman TM, Diller L, Nathan PC, Hudson MM, Robison LL

    Journal: Cancer

  • Perceptions of risk of infertility among male survivors of childhood cancer: a report from the Childhood Cancer Survivor Study.

    2018

    Citation: 124(11): 2447-2455

    Author(s): Gilleland Marchak J, Seidel KD, Mertens AC, Ritenour CWM, Wasilewski-Masker K, Leisenring WM, Sklar CA, Ford JS, Krull KR, Stovall M, Robison LL, Armstrong GT, Meacham LR.

    Journal: Cancer

  • Prediction of ischemic heart disease and stroke in survivors of childhood cancer.

    2018

    Citation: 36(1):44-52

    Author(s): Chow EJ, Chen Y, Hudson MM, Feijen EAM, Kremer LC, Border WL, Green DM, Meacham LR, Mulrooney DA, Ness KK, Oeffinger KC, Ronckers CM, Sklar CA, Stovall M, van der Pal HJ, van Dijk IWEM, van Leeuwen FE, Weathers RE, Robison LL, Armstrong GT, Yasui Y.

    Journal: J Clin Oncol

  • Regression Analysis of Incomplete Data from Event History Studies with the Proportional Rates Model.

    2018

    Citation: 11(1):91-97

    Author(s): Yu G, Zhu L, Sun J, Robison LL.

    Journal: Stat Interface

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