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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Racial/Ethnic Differences in Risk of Adverse Outcomes Among Childhood Cancer Survivors: The Childhood Cancer Survivor Study.

    2016

    Citation: 34(14):1634-43

    Author(s): Liu Q, Leisenring WM, Ness KK, Robison LL, Armstrong GT, Yasui Y, Bhatia S.

    Journal: J Clin Oncol

  • Pregnancy after chemotherapy in male and female survivors of childhood cancer treated between 1970 and 1999: a report from the Childhood Cancer Survivor Study cohort. 

    2016

    Citation: 17(5):567-76

    Author(s): Chow EJ, Stratton KL, Leisenring WM, Oeffinger KC, Sklar CA, Donaldson SS, Ginsberg JP, Kenney LB, Levine JM, Robison LL, Shnorhavorian M, Stovall M, Armstrong GT, Green DM.

    Journal: Lancet Oncol

  • Breast Cancer Risk in Childhood Cancer Survivors Without a History of Chest Radiotherapy: A Report from the Childhood Cancer Survivor Study.

    2016

    Citation: 34(9):910-8

    Author(s): Henderson TO, Moskowitz CS, Chou JF, Bradbury AR, Neglia JP, Dang CT, Onel K, Novetsky Friedman D, Bhatia S, Strong LC, Stovall M, Kenney LB, Barnea D, Lorenzi E, Hammond S, Leisenring WM, Robison LL, Armstrong GT, Diller LR, Oeffinger KC.

    Journal: J Clin Oncol

  • Childhood cancer survivorship research in minority populations: A position paper from the Childhood Cancer Survivor Study.

    2016

    Citation: 122(15):2426-39

    Author(s): Bhatia S, Gibson TM, Ness KK, Liu Q, Oeffinger KC, Krull KR, Nathan PC, Neglia JP, Leisenring W, Yasui Y, Robison LL, Armstrong GT.

    Journal: Cancer

  • Intestinal Obstruction in Survivors of Childhood Cancer: A Report from the Childhood Cancer Survivor Study.

    2015

    Citation: 33(26):2893-900

    Author(s): Madenci AL, Fisher S, Diller LR, Goldsby RE, Leisenring WM, Oeffinger KC, Robison LL, Sklar CA, Stovall M, Weathers RE, Armstrong GT, Yasui Y, Weldon CB.

    Journal: J Clin Oncol

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