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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Reduction in Late Mortality among 5-Year Survivors of Childhood Cancer.

    2016

    Citation: 374(9):833-42

    Author(s): Armstrong GT, Chen Y, Yasui Y, Leisenring W, Gibson TM, Mertens AC, Stovall M, Oeffinger KC, Bhatia S, Krull KR, Nathan PC, Neglia JP, Green DM, Hudson MM, Robison LL.

    Journal: N Engl J Med

  • Impact of Vision Loss Among Survivors of Childhood Central Nervous System Astroglial Tumors.

    2016

    Citation: 122(5):730-9

    Author(s): de Blank P, Fisher MJ, Lu L, Leisenring WM, Ness KK, Sklar CA, Stovall M, Vukadinovich C, Robison LL, Armstrong GT, Krull KR.

    Journal: Cancer

  • Risk and Impact of Pulmonary Complications in Survivors of Childhood Cancer: A Report from the Childhood Cancer Survivor Study.

    2016

    Citation: 122(23):3687-3696

    Author(s): Dietz AC, Chen Y, Yasui Y, Ness KK, Hagood JS, Chow EJ, Stovall M, Neglia JP, Oeffinger KC, Mertens AC, Robison LL, Armstrong GT, Mulrooney DA.

    Journal: Cancer

  • Erectile Dysfunction in Male Survivors of Childhood Cancer - A Report from the Childhood Cancer Survivor Study.

    2016

    Citation: 13(6):945-54

    Author(s): Ritenour CW, Seidel KD, Leisenring W, Mertens AC, Wasilewski-Masker K, Shnorhavorian M, Sklar CA, Whitton JA, Stovall M, Constine LS, Armstrong GT, Robison LL, Meacham LR.

    Journal: J Sex Med

  • Chronic Conditions and Utility-Based Health-Related Quality of Life in Adult Childhood Cancer Survivors.

    2016

    Citation: 108(9)djw046

    Author(s): Yeh JM, Hanmer J, Ward Z, Leisenring WM, Armstrong GT, Hudson MM, Stovall M, Robison LL, Oeffinger KC, Diller L.

    Journal: J Natl Cancer Inst

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