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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Long-term sequelae in survivors of childhood leukemia with Down syndrome: A Childhood Cancer Survivor Study report.

    2018

    Citation: 124(3):617-625

    Author(s): Goldsby RE, Stratton KL, Raber S, Ablin A, Strong LC, Oeffinger K , Sklar CA, Armstrong GT, Robison LL, Bhatia S, Leisenring WM

    Journal: Cancer

  • Mental health insurance access and utilization among childhood cancer survivors: a report from the Childhood Cancer Survivor Study.

    2018

    Citation: 12(4):528-536

    Author(s): Perez GK, Krichhoff AC, Recklitis C, Krull KR, Kuhlthau KA, Nathan PC, Rabin J, Armstrong GT, Leisenring W, Robison LL, Park E.

    Journal: J Cancer Surviv

  • Nonsurgical premature menopause and reproductive implications in survivors of childhood cancer: a report from the Childhood Cancer Survivor Study. 

    2018

    Citation: 124(5):1044-1052

    Author(s): Levine JM, Whitton JA, Ginsberg JP, Green DM, Leisenring WM, Stovall M, Robison LL, Armstrong GT, Sklar CA.

    Journal: Cancer

  • Patterns of Internet-based health information seeking in adult survivors of childhood cancer.

    2018

    Citation: 65(5):e26954

    Author(s): Claridy MD, Hudson MM, Caplan L, Mitby PA, Leisenring W, Smith SA, Robison LL, Mertens AC.

    Journal: Pediatr Blood Cancer

  • Perceptions of future health and cancer risk in adult survivors of childhood cancer: A report from the Childhood Cancer Survivor Study.

    2018

    Citation: 124(16):3436-3444

    Author(s): Gibson TM, Li C, Armstrong GT, Srivastava DK, Leisenring WM, Mertens A, Brinkman TM, Diller L, Nathan PC, Hudson MM, Robison LL

    Journal: Cancer

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