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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Chronic Conditions and Utility-Based Health-Related Quality of Life in Adult Childhood Cancer Survivors.

    2016

    Citation: 108(9)djw046

    Author(s): Yeh JM, Hanmer J, Ward Z, Leisenring WM, Armstrong GT, Hudson MM, Stovall M, Robison LL, Oeffinger KC, Diller L.

    Journal: J Natl Cancer Inst

  • Endocrine Abnormalities in Aging Survivors of Childhood Cancer: A Report from the Childhood Cancer Survivor Study.

    2016

    Citation: 34(27):3240-7

    Author(s): Mostoufi-Moab S, Seidel K, Leisenring WM, Armstrong GT, Oeffinger KC, Stovall M, Meacham LR, Green DM, Weathers R, Ginsberg JP, Robison LL, Sklar CA.

    Journal: J Clin Oncol

  • Behavioral, Social and Emotional Symptom Comorbidities and Profiles in Adolescent Survivors of Childhood Cancer: A Report From the Childhood Cancer Survivor Study.

    2016

    Citation: 34(28):3417-25

    Author(s): Brinkman TM, Li C, Vannatta KA, Marchak JG, Lai JS, Prasad PK, Kimberg C, Vuotto S, Di C, Srivastava D, Robison LL, Armstrong GT, Krull KR.

    Journal: J Clin Oncol

  • Thyroid Cancer after Childhood Exposure to External Radiation: An Updated Pooled Analysis of 12 Studies.

    2016

    Citation: 185(5):473-84

    Author(s): Veiga LH, Holmberg E, Anderson H, Pottern L, Sadetzki S, Adams MJ, Sakata R, Schneider AB, Inskip P, Bhatti P, Johansson R, Neta G, Shore R, de Vathaire F, Damber L, Kleinerman R, Hawkins MM, Tucker M, Lundell M, Lubin JH.

    Journal: Radiat Res

  • A Comparative Evaluation of Normal Tissue Doses for Patients Receiving Radiation Therapy for Hodgkin Lymphoma on the Childhood Cancer Survivor Study and Recent Children's Oncology Group Trials.

    2016

    Citation: 95(2):707-11

    Author(s): Zhou R, Ng A, Constine LS, Stovall M, Armstrong GT, Neglia JP, Friedman DL, Kelly K, FitzGerald TJ, Hodgson DC.

    Journal: Int J Radiat Oncol Biol Phys

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