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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Therapy-related cardiac risk in childhood cancer survivors: an analysis of the Childhood Cancer Survivor Study.

    2019

    Citation: 37(13):1090-1101

    Author(s): Bates JE, Howell RM, Liu Q, Yasui Y, Mulrooney DA, Dhakal S, Smith SA, Leisenring WM, Indelicato DJ, Gibson TM, Armstrong GT, Oeffinger KC, Constine LS.

    Journal: J Clin Oncol

  • A high-risk haplotype for premature menopause in childhood cancer survivors exposed to gonadotoxic therapy.

    2018

    Citation: 110(8):895-904

    Author(s): Brooke RJ, Im C, Wilson CL, Krasin MJ, Liu Q, Li Z, Sapkota Y, Moon W, Morton LM, Wu G, Wang Z, Chen W, Howell RM, Armstrong GT, Bhatia S, Mostoufi-Moab S, Seidel K, Chanock SJ, Zhang J, Green DM, Sklar CA, Hudson MM, Robison LL, Chemaitilly W, Yasui Y.

    Journal: J Natl Cancer Inst

  • A threshold-free summary index of prediction accuracy for censored time to event data.

    2018

    Citation: 37(10):1671-1681

    Author(s): Yuan Y, Zhou QM, Li B, Cai H, Chow EJ, Armstrong GT.

    Journal: Stat Med

  • An additive-multiplicative mean model for panel count data with dependent observation and drop-out processes.

    2018

    Citation: 46(2):414-431

    Author(s): Yu G, Li Y, Zhu L, Zhao H, Sun J, Robison LL.

    Journal: Scandinavian Journal of Statistics

  • Association of exercise with mortality in adult survivors of childhood cancer.

    2018

    Citation: 4(10):1352-1358

    Author(s): Scott JM, Li N, Liu Q, Yasui Y, Leisenring W, Nathan PC, Gibson T, Armenian SH, Nilsen TS, Oeffinger KC, Ness KK, Adams SC, Robison LL, Armstrong GT, Jones LW.

    Journal: JAMA Oncol

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