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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Long-term health and social function in adult survivors of pediatric astrocytoma: a report from the Childhood Cancer Survivor Study.

    2019

    Citation: 106;171-180

    Author(s): Effinger KE, Stratton KL, Fisher PG, Ness KK, Krull KR, Oeffinger KC, Armstrong GT, Robison LL, Hudson MM, Leisenring WM, Nathan PC.

    Journal: Eur J Cancer

  • Mortality after breast cancer among adult survivors of childhood cancer: a report from the Childhood Cancer Survivor Study.

    2019

    Citation: 37(24):2120-2130

    Author(s): Moskowitz CS, Chou JF, Neglia JP, Partridge AH, Howell RM, Diller LR, Novetsky Friedman D, Barnea D, Morton LM, Turcotte LM, Arnold MA, Leisenring WM, Armstrong GT, Robison LL, Oeffinger KC, Henderson TO.

    Journal: J Clin Oncol

  • Neuropsychological and socioeconomic outcomes in adult survivors of pediatric low-grade glioma.

    2019

    Citation: 125(17):3050-3058

    Author(s): Ris MD, Leisenring WM, Goodman P, Di C, Noll J, Levy W, Robison LL, Armstrong GT.

    Journal: Cancer

  • Posttraumatic stress as a contributor to behavioral health outcomes and healthcare utilization in adult survivors of childhood cancer: a report from the Childhood Cancer Survivor Study.

    2019

    Citation: 13(6):981-992

    Author(s): Crochet E, Tyc VL, Wang M, Srivastava DK, Van Sickle K, Nathan PC, Leisenring WM, Gibson TM, Armstrong GT, Krull KR.

    Journal: J Cancer Surviv

  • Promoting breast cancer surveillance: The EMPOWER study, a randomized clinical trial in the Childhood Cancer Survivor Study.

    2019

    Citation: 37(24):2131-2140

    Author(s): Oeffinger KC, Ford JS, Moskowitz CS, Chou JF, Henderson TO, Hudson MM, Diller L, McDonald A, Ford J, Mubdi NZ, Rinehart D, Vukadinovich C, Gibson TM, Anderson N, Elkin EB, Garrett K, Rebull M, Leisenring W, Robison LL, Armstrong GT.

    Journal: J Clin Oncol

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