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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • “Job lock” among long-term survivors of childhood cancer: a report from the Childhood Cancer Survivor Study.

    2018

    Citation: 4(5): 707-711

    Author(s): Kirchhoff AC, Nipp R, Warner EL, Kuhlthau K, Leisenring WM, Donelan K, Rabin J, Perez GK, Oeffinger KC, Nathan PC, Robison LL, Armstrong GT, Park ER.

    Journal: JAMA Oncol

  • Social adjustment in adolescent survivors of pediatric central nervous system tumors: a report from the Childhood Cancer Survivor Study.

    2018

    Citation: 124(17):3596-3608

    Author(s): Schulte F, Brinkman TM, Li C, Fay-McClymont T, Srivastava D, Ness KK, Howell RM, Mueller S, Wells E, Strother D, Lafay-Cousin L, Leisenring W, Robison LL, Armstrong GT, Krull KR.

    Journal: Cancer

  • Perceptions of risk of infertility among male survivors of childhood cancer: a report from the Childhood Cancer Survivor Study.

    2018

    Citation: 124(11): 2447-2455

    Author(s): Gilleland Marchak J, Seidel KD, Mertens AC, Ritenour CWM, Wasilewski-Masker K, Leisenring WM, Sklar CA, Ford JS, Krull KR, Stovall M, Robison LL, Armstrong GT, Meacham LR.

    Journal: Cancer

  • Factors associated with physical activity among adolescent and young adult survivors of early childhood cancer: a report from the Childhood Cancer Survivor Study (CCSS).

    2018

    Citation: 27(2):613-619

    Author(s): Devine KA, Mertens AC, Whitton JA, Wilson CL, Ness KK, Gilleland Marchak J, Leisenring W, Oeffinger KC, Robison LL, Armstrong GT, Krull KR.

    Journal: Psychooncology

  • Hypothyroidism after radiation therapy for childhood cancer: a report from the Childhood Cancer Survivor Study.

    2018

    Citation: 190(2):117-132

    Author(s): Inskip PD, Veiga LHS, Brenner AV, Sigurdson AJ, Ostroumova E, Chow EJ, Stovall M, Smith SA, Weathers RE, Leisenring W, Robison LL, Armstrong GT, Sklar CA, Lubin JH.

    Journal: Radiat Res

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