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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Derivation of anthracycline and anthraquinone equivalence ratios to doxorubicin for late-onset cardiotoxicity.  

    2019

    Citation: 5(6):864-871

    Author(s): Feijen EAM, Leisenring WM, Stratton KL, Ness KK, van der Pal HJH, van Dalen EC, Armstrong GT, Aune GJ, Green DM, Hudson MM, Loonen J, Oeffinger KC, Robison LL, Yasui Y, Kremer LCM, Chow EJ.

    Journal: JAMA Oncol

  • DNA methylation and obesity in survivors of pediatric acute lymphoblastic leukemia: a report from the Childhood Cancer Survivor Study.

    2019

    Citation: 58(1):52-59

    Author(s): Lupo PJ, Brown AL, Arroyo VM, Kamdar KY, Belmont JW, Scheurer ME, Leisenring WM, Monica Gramatges M, Faith Okcu M, Yasui Y, Oeffinger KC, Robison LL, Armstrong GT, Bhatia S.

    Journal: Genes Chromosomes Cancer

  • Endocrine and metabolic disorders in survivors of childhood cancer and health-related quality of life and physical activity.  

    2019

    Citation: 104(11):5183-5194

    Author(s): Pradhan KR, Chen Y, Moustoufi-Moab S, Krull K, Oeffinger KC, Sklar C, Armstrong GT, Ness KK, Robison LL, Yasui Y, Nathan PC.

    Journal: J Clin Endocrinol Meta

  • Genetic susceptibility to radiation-induced breast cancer after Hodgkin Lymphoma.

    2019

    Citation: 133(10):1130-1139

    Author(s): Opstal-van Winden AWJ, de Haan HG, Hauptmann M, Schmidt MK, Broeks A, Russell NS, Janus CPM, Krol ADG, van der Bann FH, De Bruin ML, van Eggermond AM, Dennis J, Anton Culver H, Haiman CA, Sawyer EJ, Cox A, Devilee P, Hooning MJ, Peto J, Couch FJ, Pharoah P, Orr N, Easton DF, Aleman BMP, Strong LC, Bhatia S, Cooke R, Robison LL, Swerdlow AJ, van Leeuwen FE.

    Journal: Blood

  • Genome-wide association study in irradiated childhood cancer survivors identifies HTR2A for subsequent basal cell carcinoma.

    2019

    Citation: 139(9):2042-2045

    Author(s): Sapkota Y, Turcotte LM, Ehrhardt MJ, Howell RM, Arnold MA, Wilson CL, Leisenring W, Wang Z, Sampson J, Dagnall CL, Karlins E, Li SA, Hicks BD, Weathers R, Smith SA, Shelton K, Liu Q, Tucker MA, Chanock SJ, Zhang J, Hudson MM, Neglia JP, Armstrong GT, Robison LL, Morton L, Bhatia S, Yasui Y.

    Journal: J Invest Dermatol

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