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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • A high-risk haplotype for premature menopause in childhood cancer survivors exposed to gonadotoxic therapy.

    2018

    Citation: 110(8):895-904

    Author(s): Brooke RJ, Im C, Wilson CL, Krasin MJ, Liu Q, Li Z, Sapkota Y, Moon W, Morton LM, Wu G, Wang Z, Chen W, Howell RM, Armstrong GT, Bhatia S, Mostoufi-Moab S, Seidel K, Chanock SJ, Zhang J, Green DM, Sklar CA, Hudson MM, Robison LL, Chemaitilly W, Yasui Y.

    Journal: J Natl Cancer Inst

  • Insurance, chronic health conditions, and utilization of primary and specialty outpatient services: a Childhood Cancer Survivor Study report.

    2018

    Citation: 12(5):639-646

    Author(s): Mueller EL, Park ER, Kirchhoff AC, Kuhlthau K, Nathan PC, Perez GK, Rabin J, Hutchinson R, Oeffinger KC, Robison LL, Armstrong GT, Leisenring WM, Donelan K.

    Journal: J Cancer Surviv

  • Longitudinal assessment of late-onset neurologic conditions in survivors of childhood Central Nervous System tumors: a Childhood Cancer Survivor Study report.

    2018

    Citation: 20(1):132-142

    Author(s): Wells EM, Ullrich NJ, Seidel K, Leisenring W, Sklar CA, Armstrong GT, Diller L, King A, Krull KR, Neglia JP, Stovall M, Whelan K, Oeffinger KC, Robison LL, Packer RJ.

    Journal: Neuro Oncol

  • Mental health insurance access and utilization among childhood cancer survivors: a report from the Childhood Cancer Survivor Study.

    2018

    Citation: 12(4):528-536

    Author(s): Perez GK, Krichhoff AC, Recklitis C, Krull KR, Kuhlthau KA, Nathan PC, Rabin J, Armstrong GT, Leisenring W, Robison LL, Park E.

    Journal: J Cancer Surviv

  • Prediction of ischemic heart disease and stroke in survivors of childhood cancer.

    2018

    Citation: 36(1):44-52

    Author(s): Chow EJ, Chen Y, Hudson MM, Feijen EAM, Kremer LC, Border WL, Green DM, Meacham LR, Mulrooney DA, Ness KK, Oeffinger KC, Ronckers CM, Sklar CA, Stovall M, van der Pal HJ, van Dijk IWEM, van Leeuwen FE, Weathers RE, Robison LL, Armstrong GT, Yasui Y.

    Journal: J Clin Oncol

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