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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Late infection-related mortality in asplenic survivors of childhood cancer: a report from the Childhood Cancer Survivor Study.

    2018

    Citation: 36(16):1571-1578

    Author(s): Weil BR, Madenci AL, Liu Q, Howell RM, Gibson TM, Yasui Y, Neglia JP, Leisenring WM, Smith SA, Tonorezos ES, Friedman DN, Constine LS, Tinkle CL, Diller LR, Armstrong GT, Oeffinger KC, Weldon CB.

    Journal: J Clin Oncol

  • Successful use of whole genome amplified DNA from multiple source types for high-density Illumina SNP microarrays.

    2018

    Citation: 19(1):182

    Author(s): Dagnall CL, Morton LM, Hicks BD, Li S, Zhou W, Karlins E, Teshome K, Chowdhury S, Lashley KS, Sampson JN, Robison LL, Armstrong GT, Bhatia S, Radloff GA, Davies SM, Tucker MA, Yeager M, Chanock SJ.

    Journal: BMC Genomics

  • Association of exercise with mortality in adult survivors of childhood cancer.

    2018

    Citation: 4(10):1352-1358

    Author(s): Scott JM, Li N, Liu Q, Yasui Y, Leisenring W, Nathan PC, Gibson T, Armenian SH, Nilsen TS, Oeffinger KC, Ness KK, Adams SC, Robison LL, Armstrong GT, Jones LW.

    Journal: JAMA Oncol

  • Long-term risk of venous thromboembolism in survivors of childhood cancer: a report from the Childhood Cancer Survivor Study.

    2018

    Citation: 36(31):3144-3151

    Author(s): Madenci AL, Weil BR, Liu Q, Murphy AJ, Gibson TM, Yasui Y, Leisenring WM, Howell RM, Tinkle CL, Nekhlyudov L, Diller LR, Armstrong GT, Oeffinger KC, Weldon CB.

    Journal: J Clin Oncol

  • Telomere length-associated genetic variants and the risk of thyroid cancer in survivors of childhood cancer: a report from the Childhood Cancer Survivor Study (CCSS).

    2018

    Citation: 28(2):417-419

    Author(s): Gramatges MM, Morton LM, Yasui Y, Arnold MA, Neglia JP, Leisenring WM, Machiela MJ, Dagnall CL, Chanock SJ, Armstrong GT, Robison LL, Bhatia S, Lupo PJ.

    Journal: Cancer Epidemiol Biomarkers Prev

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