Search
Publications Icon

Publications

Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

We're sorry, it looks like there has been an error. Please try again soon.

  • Longitudinal assessment of late-onset neurologic conditions in survivors of childhood Central Nervous System tumors: a Childhood Cancer Survivor Study report.

    2018

    Citation: 20(1):132-142

    Author(s): Wells EM, Ullrich NJ, Seidel K, Leisenring W, Sklar CA, Armstrong GT, Diller L, King A, Krull KR, Neglia JP, Stovall M, Whelan K, Oeffinger KC, Robison LL, Packer RJ.

    Journal: Neuro Oncol

  • Mental health insurance access and utilization among childhood cancer survivors: a report from the Childhood Cancer Survivor Study.

    2018

    Citation: 12(4):528-536

    Author(s): Perez GK, Krichhoff AC, Recklitis C, Krull KR, Kuhlthau KA, Nathan PC, Rabin J, Armstrong GT, Leisenring W, Robison LL, Park E.

    Journal: J Cancer Surviv

  • Prediction of ischemic heart disease and stroke in survivors of childhood cancer.

    2018

    Citation: 36(1):44-52

    Author(s): Chow EJ, Chen Y, Hudson MM, Feijen EAM, Kremer LC, Border WL, Green DM, Meacham LR, Mulrooney DA, Ness KK, Oeffinger KC, Ronckers CM, Sklar CA, Stovall M, van der Pal HJ, van Dijk IWEM, van Leeuwen FE, Weathers RE, Robison LL, Armstrong GT, Yasui Y.

    Journal: J Clin Oncol

  • A threshold-free summary index of prediction accuracy for censored time to event data.

    2018

    Citation: 37(10):1671-1681

    Author(s): Yuan Y, Zhou QM, Li B, Cai H, Chow EJ, Armstrong GT.

    Journal: Stat Med

  • Roles of positive psychological outcomes in future health perception and mental health problems: a report from the Childhood Cancer Survivor Study.

    2018

    Citation: 27(12):2754-2760

    Author(s): Weinstein AG, Henrich CC, Armstrong GT, Stratton KL, King TZ, Leisenring WM, Krull KR.

    Journal: Psychooncology

Related Information