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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Neuropsychological and socioeconomic outcomes in adult survivors of pediatric low-grade glioma.

    2019

    Citation: 125(17):3050-3058

    Author(s): Ris MD, Leisenring WM, Goodman P, Di C, Noll J, Levy W, Robison LL, Armstrong GT.

    Journal: Cancer

  • Regression Analysis of Incomplete Data from Event History Studies with the Proportional Rates Model.

    2018

    Citation: 11(1):91-97

    Author(s): Yu G, Zhu L, Sun J, Robison LL.

    Journal: Stat Interface

  • An additive-multiplicative mean model for panel count data with dependent observation and drop-out processes.

    2018

    Citation: 46(2):414-431

    Author(s): Yu G, Li Y, Zhu L, Zhao H, Sun J, Robison LL.

    Journal: Scandinavian Journal of Statistics

  • Patterns of Internet-based health information seeking in adult survivors of childhood cancer.

    2018

    Citation: 65(5):e26954

    Author(s): Claridy MD, Hudson MM, Caplan L, Mitby PA, Leisenring W, Smith SA, Robison LL, Mertens AC.

    Journal: Pediatr Blood Cancer

  • Chronic health conditions and neurocognitive function in aging survivors of childhood cancer: a report from the Childhood Cancer Survivor Study.

    2018

    Citation: 110(4):411-419

    Author(s): Cheung YT, Brinkman TM, Li C, Mzayek Y, Srivastava D, Ness KK, Patel SK, Howell RM, Oeffinger KC, Robison LL, Armstrong GT, Krull KR.

    Journal: J Natl Cancer Inst

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