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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Association of exercise with mortality in adult survivors of childhood cancer.

    2018

    Citation: 4(10):1352-1358

    Author(s): Scott JM, Li N, Liu Q, Yasui Y, Leisenring W, Nathan PC, Gibson T, Armenian SH, Nilsen TS, Oeffinger KC, Ness KK, Adams SC, Robison LL, Armstrong GT, Jones LW.

    Journal: JAMA Oncol

  • Long-term risk of venous thromboembolism in survivors of childhood cancer: a report from the Childhood Cancer Survivor Study.

    2018

    Citation: 36(31):3144-3151

    Author(s): Madenci AL, Weil BR, Liu Q, Murphy AJ, Gibson TM, Yasui Y, Leisenring WM, Howell RM, Tinkle CL, Nekhlyudov L, Diller LR, Armstrong GT, Oeffinger KC, Weldon CB.

    Journal: J Clin Oncol

  • Telomere length-associated genetic variants and the risk of thyroid cancer in survivors of childhood cancer: a report from the Childhood Cancer Survivor Study (CCSS).

    2018

    Citation: 28(2):417-419

    Author(s): Gramatges MM, Morton LM, Yasui Y, Arnold MA, Neglia JP, Leisenring WM, Machiela MJ, Dagnall CL, Chanock SJ, Armstrong GT, Robison LL, Bhatia S, Lupo PJ.

    Journal: Cancer Epidemiol Biomarkers Prev

  • A high-risk haplotype for premature menopause in childhood cancer survivors exposed to gonadotoxic therapy.

    2018

    Citation: 110(8):895-904

    Author(s): Brooke RJ, Im C, Wilson CL, Krasin MJ, Liu Q, Li Z, Sapkota Y, Moon W, Morton LM, Wu G, Wang Z, Chen W, Howell RM, Armstrong GT, Bhatia S, Mostoufi-Moab S, Seidel K, Chanock SJ, Zhang J, Green DM, Sklar CA, Hudson MM, Robison LL, Chemaitilly W, Yasui Y.

    Journal: J Natl Cancer Inst

  • Insurance, chronic health conditions, and utilization of primary and specialty outpatient services: a Childhood Cancer Survivor Study report.

    2018

    Citation: 12(5):639-646

    Author(s): Mueller EL, Park ER, Kirchhoff AC, Kuhlthau K, Nathan PC, Perez GK, Rabin J, Hutchinson R, Oeffinger KC, Robison LL, Armstrong GT, Leisenring WM, Donelan K.

    Journal: J Cancer Surviv

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