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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Chronic health conditions and neurocognitive function in aging survivors of childhood cancer: a report from the Childhood Cancer Survivor Study.

    2018

    Citation: 110(4):411-419

    Author(s): Cheung YT, Brinkman TM, Li C, Mzayek Y, Srivastava D, Ness KK, Patel SK, Howell RM, Oeffinger KC, Robison LL, Armstrong GT, Krull KR.

    Journal: J Natl Cancer Inst

  • Temporal patterns in the risk of chronic health conditions in survivors of childhood cancer diagnosed 1970-99: a report from the Childhood Cancer Survivor Study cohort.

    2018

    Citation: 19(12):1590-1601

    Author(s): Gibson TM, Mostoufi-Moab S, Stratton KL, Leisenring WM, Barnea D, Chow EJ, Donaldson SS, Howell RM, Hudson MM, Mahajan A, Nathan PC, Ness KK, Sklar CA, Tonorezos ES, Weldon CB, Wells EM, Yasui Y, Armstrong GT, Robison LL, Oeffinger KC.

    Journal: Lancet Oncol

  • Long-term sequelae in survivors of childhood leukemia with Down syndrome: A Childhood Cancer Survivor Study report.

    2018

    Citation: 124(3):617-625

    Author(s): Goldsby RE, Stratton KL, Raber S, Ablin A, Strong LC, Oeffinger K , Sklar CA, Armstrong GT, Robison LL, Bhatia S, Leisenring WM

    Journal: Cancer

  • Late infection-related mortality in asplenic survivors of childhood cancer: a report from the Childhood Cancer Survivor Study.

    2018

    Citation: 36(16):1571-1578

    Author(s): Weil BR, Madenci AL, Liu Q, Howell RM, Gibson TM, Yasui Y, Neglia JP, Leisenring WM, Smith SA, Tonorezos ES, Friedman DN, Constine LS, Tinkle CL, Diller LR, Armstrong GT, Oeffinger KC, Weldon CB.

    Journal: J Clin Oncol

  • Successful use of whole genome amplified DNA from multiple source types for high-density Illumina SNP microarrays.

    2018

    Citation: 19(1):182

    Author(s): Dagnall CL, Morton LM, Hicks BD, Li S, Zhou W, Karlins E, Teshome K, Chowdhury S, Lashley KS, Sampson JN, Robison LL, Armstrong GT, Bhatia S, Radloff GA, Davies SM, Tucker MA, Yeager M, Chanock SJ.

    Journal: BMC Genomics

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