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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Adherence to surveillance for second malignant neoplasms and cardiac dysfunction in childhood cancer survivors: a Childhood Cancer Survivor Study.

    2020

    Citation: 38(15):1711-1722

    Author(s): Yan AP, Chen Y, Henderson TO, Oeffinger KC, Hudson MM, Gibson TM, Neglia JP, Leisenring WM, Ness KK, Ford JS, Robison LL, Armstrong GT, Yasui Y, Nathan PC.

    Journal: J Clin Oncol

  • Association of breast cancer risk after childhood cancer with radiation dose to the breast and anthracycline use: a report from the Childhood Cancer Survivor Study.

    2020

    Citation: 173(12):1171-1179

    Author(s): Veiga LH, Curtis RE, Morton LM, Withrow DR, Howell R, Smith SA, Weathers RE, Oeffinger KC, Moskowitz CS, Henderson TO, Arnold MA, Gibson TM, Leisenring WM, Neglia JP, Turcotte LM, Whitton JA, Robison LL, Armstrong GT, Inskip PD, Berrington de Gonzalez A.

    Journal: JAMA Pediatr

  • Association of germline BRCA2 mutations with the risk of pediatric or adolescent non-Hodgkin lymphoma.

    2020

    Citation: 5(9):1362-1364

    Author(s): Wang Z, Wilson CL, Armstrong GT, Hudson MM, Zhang J, Nichols KE, Robison LL.

    Journal: JAMA Oncol

  • Barriers and facilitators of risk-based health care for adult survivors of childhood cancer: a report from the Childhood Cancer Survivor Study.

    2020

    Citation: 126(3):619-627

    Author(s): Ford JS, Tonorezos ES, Mertens AC, Hudson MM, Casillas J, Foster BM, Moskowitz CS, Smith SM, Chou JF, Buchanan G, Robison LL, Oeffinger KC.

    Journal: Cancer

  • Clinical benefits, harms, and cost-effectiveness of breast cancer screening for survivors of childhood cancer treated with chest radiation: a comparative modeling study.

    2020

    Citation: 173(5):331-341

    Author(s): Yeh JM, Lowry KP, Schechter CB, Diller LR, Alagoz O, Armstrong GT, Hampton JM, Leisenring WM, Liu Q, Mandelblatt JS, Miglioretti DL, Moskowitz CS, Oeffinger KC, Trentham-Dietz A, Stout NK.

    Journal: Ann Intern Med

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