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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Sex-specific associations between chemotherapy, chronic conditions, and neurocognitive impairment in ALL survivors: a report from the Childhood Cancer Survivor Study.

    2021

    Citation: 113(5):588-596

    Author(s): Van der Plas E, Qiu W, Nieman BJ, Yasui Y, Liu Q, Dixon S, Kadan-Lottick NS, Weldon CB, Weil BR, Jacola LM, Gibson TM, Leisenring W, Oeffinger K, Hudson MM, Robison LL, Armstrong GT, Krull KR.

    Journal: J Natl Cancer Inst

  • Adherence to surveillance for second malignant neoplasms and cardiac dysfunction in childhood cancer survivors: a Childhood Cancer Survivor Study.

    2020

    Citation: 38(15):1711-1722

    Author(s): Yan AP, Chen Y, Henderson TO, Oeffinger KC, Hudson MM, Gibson TM, Neglia JP, Leisenring WM, Ness KK, Ford JS, Robison LL, Armstrong GT, Yasui Y, Nathan PC.

    Journal: J Clin Oncol

  • Association of breast cancer risk after childhood cancer with radiation dose to the breast and anthracycline use: a report from the Childhood Cancer Survivor Study.

    2020

    Citation: 173(12):1171-1179

    Author(s): Veiga LH, Curtis RE, Morton LM, Withrow DR, Howell R, Smith SA, Weathers RE, Oeffinger KC, Moskowitz CS, Henderson TO, Arnold MA, Gibson TM, Leisenring WM, Neglia JP, Turcotte LM, Whitton JA, Robison LL, Armstrong GT, Inskip PD, Berrington de Gonzalez A.

    Journal: JAMA Pediatr

  • Association of germline BRCA2 mutations with the risk of pediatric or adolescent non-Hodgkin lymphoma.

    2020

    Citation: 5(9):1362-1364

    Author(s): Wang Z, Wilson CL, Armstrong GT, Hudson MM, Zhang J, Nichols KE, Robison LL.

    Journal: JAMA Oncol

  • Barriers and facilitators of risk-based health care for adult survivors of childhood cancer: a report from the Childhood Cancer Survivor Study.

    2020

    Citation: 126(3):619-627

    Author(s): Ford JS, Tonorezos ES, Mertens AC, Hudson MM, Casillas J, Foster BM, Moskowitz CS, Smith SM, Chou JF, Buchanan G, Robison LL, Oeffinger KC.

    Journal: Cancer

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