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Why do publications about LTFU Study results refer to the Childhood Cancer Survivor Study (CCSS)?

Long-Term Follow-Up Study (LTFU) is the name we use when communicating about the study with participants, while Childhood Cancer Survivor Study (CCSS) is the scientific name used by researchers and the medical community. “Long-Term Follow-Up Study” emphasizes what the study is about without disclosing that some participants may be survivors of childhood cancer, thus protecting their personal health information.

You may hear about the Childhood Cancer Survivor Study or CCSS when important new findings are reported in the news. We want you to take pride in the attention the study receives, because your dedication contributes to every advance we make in protecting the health of survivors.

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  • Hyperthyroidism after radiation therapy for childhood cancer: a report from the Childhood Cancer Survivor Study.

    2019

    Citation: 104(2):415-424

    Author(s): Inskip PD, Veiga LHS, Brenner AV, Sigurdson AJ, Ostroumova E, Chow EJ, Stovall M, Smith SA, Leisenring W, Robison LL, Armstrong GT, Sklar CA, Lubin JH.

    Journal: Int J Radiat Oncol Biol Phys

  • Posttraumatic stress as a contributor to behavioral health outcomes and healthcare utilization in adult survivors of childhood cancer: a report from the Childhood Cancer Survivor Study.

    2019

    Citation: 13(6):981-992

    Author(s): Crochet E, Tyc VL, Wang M, Srivastava DK, Van Sickle K, Nathan PC, Leisenring WM, Gibson TM, Armstrong GT, Krull KR.

    Journal: J Cancer Surviv

  • Therapy-related cardiac risk in childhood cancer survivors: an analysis of the Childhood Cancer Survivor Study.

    2019

    Citation: 37(13):1090-1101

    Author(s): Bates JE, Howell RM, Liu Q, Yasui Y, Mulrooney DA, Dhakal S, Smith SA, Leisenring WM, Indelicato DJ, Gibson TM, Armstrong GT, Oeffinger KC, Constine LS.

    Journal: J Clin Oncol

  • Promoting breast cancer surveillance: The EMPOWER study, a randomized clinical trial in the Childhood Cancer Survivor Study.

    2019

    Citation: 37(24):2131-2140

    Author(s): Oeffinger KC, Ford JS, Moskowitz CS, Chou JF, Henderson TO, Hudson MM, Diller L, McDonald A, Ford J, Mubdi NZ, Rinehart D, Vukadinovich C, Gibson TM, Anderson N, Elkin EB, Garrett K, Rebull M, Leisenring W, Robison LL, Armstrong GT.

    Journal: J Clin Oncol

  • Alcohol consumption behaviors and neurocognitive dysfunction and emotional distress in adult survivors of childhood cancer: A report from the Childhood Cancer Survivor Study.

    2019

    Citation: 114(2):226-235

    Author(s): Brinkman TM, Lown EA, Li C, Olsson IT, Marchak JG, Stuber ML, Vuotto S, Srivastava D, Nathan PC, Leisenring W, Armstrong GT, Robison LL, Krull KR.

    Journal: Addiction

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