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For Participants

As a participant in the Long-Term Follow-Up (LTFU) Study, you are a partner in historic research. The LTFU Study is unique — it's the largest study of its kind. The information you provide contributes to our understanding of the health needs of survivors.

The National Cancer Institute describes the LTFU Study as "one of the most powerful NCI-supported research efforts for tracking the needs and health of survivors."

With your help, we've been able to learn a lot. But many questions are still unanswered. If you have not completed a health update survey in the last 1-3 years, please contact us.

  • Participant Benefits

    Participants of the Long-Term Follow-Up Study help improve childhood cancer survivorship through completing surveys.

    Review the benefits
  • Frequently Asked Questions

    Questions about the LTFU Study? Here are the answers to some of the questions most commonly asked by LTFU participants. If you don’t find your answer here, please contact the study team.

    Get answers
  • Start Your Survey

    Every few years, surveys are sent to LTFU Study participants to learn about their recent health and topics relevant to the study’s research.

    Start your survey
  • Update your LTFU Study Information

    We ask participants to update their contact information if it has changed so we can stay connected. Click the button below to update your contact information.

    Stay current

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