Participant Summary (Demographics)

On entry into the cohort, participants, including both survivors and siblings, completed a baseline questionnaire that collected basic demographic and health-related information. For participants under age 18 at baseline, the questionnaire was completed by a parent or guardian. Follow-up questionnaires are mailed to participants approximately every two years to update baseline data and to gather additional information on questions of interest.

In addition to completing the baseline questionnaire, survivors agreed to release medical records of their cancer treatment; participating centers provided detailed abstracts of treatment records for all consenting survivors enrolled in the cohort from their site. Treatment information includes cumulative dose-specific exposure to chemotherapy, surgical procedures, and radiation therapy. The latter is evaluated by the radiation physics center at M.D. Anderson Cancer Center.

Gender of Participants
Survivors Siblings
Males 13, 028 Males 1,937
Females 11,334 Females 2,086
Current Age of Participants (as of 2/1/2016)
Survivors Siblings
16-20 756 16-20 0
21-25 2,015 21-25 23
26-30 2,606 26-30 193
31-35 4,089 31-35 584
36-40 4,145 36-40 736
41-45 3,381 41-45 763
46-50 2,410 46-50 699
51-55 1,468 51-55 576
56-60 627 56-60 302
>60 163 >60 130
Original Cancer Diagnosis of Survivors
Diagnosis Survivors
Leukemia 7,319
Brain/central nervous system 4,326
Hodgkin disease 2,996
Non-Hodgkin lymphoma 1,987
Kidney 2,159
Neuroblastoma 1,852
Soft-tissue sarcoma 1,706
Bone 2,017